General Discussion

abergirl

Still waiting!

No results from CT scan...4 weeks ago today! A letter this morning from hubby's Colo rectal nurse to say all bloods are stable .but they are still awaiting results for the CT. Honestly ....it's a bit of a long wait! 😣

KarenE

I know how you feel @abergirl, we are also waiting for CT results. We had an appointment last Monday but they only had my hubbys blood results. They promised to phone last Thursday, but no call came. I chased them on Friday the secretary said she would chase results and get someone to call. Still not heard anything. His blood results were good with cea at less than 2 so I’m hoping that’s a good sign. Hope you hear soon it’s awful waiting isn’t it. :x::x:

bettebette

It’s too long imo. I would chase it up. Good luck @abergirl.
I have just seen @KarenE’s message - I hope you get your results soon too :x::x:

Catlover

It is scan time again for us😬The wait is terrible- it never gets easier! Last time we had to wait four weeks. We are a week into our wait and expecting it to be another 3. However we go away in two weeks so might not get any results before then😬 good luck @abergirl and @KarenE - I hope you get positive results soon. :x::x::x:

KarenE

Hope you too get your results soon, and that they are positive ones 🤞 @Catlover. We also go away in two weeks and the insurance company want us to let them know if there are any changes, as it could affect the policy. :x::x:

Adnyl

@abergirl that's far too long. Give your colorectal nurse a call, they great at chasing up things :x::x:

abergirl

It really is far too long @Adnyl..,but the letter was actually from our colorectal nurse.....so she is frustrated too. So difficult to plan anything isn't it! Hope everyone has good results.:x::x:

charleyb

Thinking of you @abergirl :x::x::x::x:

abergirl

Thanks @charleyb......how are things? We are doing ever so well ..touching wood ...and if only these wretched results could arrive and be clear, we could relax for a while.Hope Charlie is doing really well :x::x::x:

charleyb

@abergirl I have everything crossed for you, hang on to the fact his CEA is normal it is a really good sign!!
We are back to scans this month i think, they seem to roll around so fast!!! We are good thanks, just celebrated our youngest sons 3rd birthday, and in a week our other son turns 5, and then the end of April Charlie turns 41......its a crazy month ha
So pleased you guys are doing well :) :x::x::x:

abergirl

Enjoy your lovely celebrations! 🤗 ...I will let you know the results ... eventually! :x::x:

terri m

Hi @abergirl . have you had any news about your husbands scan results yst?? :x::x:

abergirl

Not yet!!I am now dreading the post every day and too worried to ring up. It was 6 weeks yesterday. Keep reading on here folk with long waits and still bad news.just hoping we hear before Easter ...can't make any plans in case more appts. Needed. Hubby doing well in himself bless him .! Thanks for keeping tabs on us! :x::x::x:

terri m

Hi again @abergirl . that is terrible 6 weeks!! Maybe now you should call them.. Like you say how do you make plans With results pending.. Doubt we will go away now to short notice... Hope you get to hear soon with positive news :x::x::x:

Polly 1

I think the longest we had to wait was 5 weeks during a shortage of staff and that was bad enough. Have you spoken to your specialist nurse recently?

Also have you tried the surgeon/oncologist secretary? Ours used to tell us if the results were back although she couldn't say more until the letter had been dictated. Once that had happened she was able to read it out over the phone to my husband which was a great help as it used to take another 7-10 days to actually receive it in the post.

I hope you hear soon @abergirl but worth a try ringing round if you havnt done that recently :x::x:

bettebette

I think at six weeks I would definitely be chasing the results @abergirl, however I know exactly what you mean about not wanting to ring 😐
Fingers crossed 🤞 for a good outcome :x::x:

KarenE

Hi @abergirl, I’ve been wondering if you had your hubbys results yet. I also know what you mean about not wanting to ring. I get really anxious even as I’m dialling. But six weeks is far too long they must have the results by now. I would try ringing before the holidays while they still have full staff. Hope you get a good outcome soon 🤞 :x::x:

Jomo9

@abergirl my results were sent to the Surgeon yesterday, which was 3 weeks post the scan. My Surgeons Secretary said they were marked urgent which has me a little worried. I should get a letter this week inviting me for an appointment after Easter... I’ve got a high likelihood of Lynch and am being genetically tested at the moment. Am hoping the cancer hasn’t gone wandering!! 🤣

abergirl

Hi @Jomo9 ...I can understand your worries..it's so difficult not to stress. But.....as I keep reading..whatever the result..if there is a problem there will be a treatment...so have a lovely Easter and enjoy it..do something nice .And let's hope the news is better than you are expecting. Everything crossed for you. No news here yet again!! I will be ringing them after Easter because it will be 7 weeks then..totally unacceptable ! :x::x: