Advice re Neoadjuvent chemo before CRS & HIPEC op
Hello, this is my first post. I have read and gained a lot of support from reading the threads in this forum but until now have never had the courage to post myself. I am usually a night owl and find myself tapping into the forum late at night although I'm also always trying not do this as it messes up my sleep patterns. As you all know, that's not always easy to do with this condition!!
I was diagnosed with stage 4 sigmoid colon cancer almost 2 years ago, initially with liver mets. In the latter half of 2017 I had an anterior resection and adjuvent chemo (Folfox and cetuximab) at St Mark's hosp. In Sept/Oct 2018 I had a liver resection and a small intestine resection with an appendectomy at Hammersmith hosp. I've had no chemotherapy for the past 16 months.
In Jan 2019 my liver consultant at Hammersmith hosp told me my post op CT scan was NED. I was elated. As I hadn't seen my oncologist for 6 months or more at this stage I wanted to be sure that my case had been considered at their MDT. Hammersmith had not sent any information to St Marks and as I was concerned about a couple of things in the CT report so my oncologist requested another CT and MRI scan. The results of this, is that I have one new liver met and a growth in a peritoneal deposit that I never knew I had.
I had an explorative laparoscopy last month which was restricted by many adhesions but my surgeon reported he's happy to operate with CRS & HIPEC. On the same day my oncologist agreed that surgery is the best plan as the tumour load is so small that neo adjuvent chemo would not be necessary. Within a few days this plan changed to recommending neoadjuvent chemo as they wouldn't be able to offer an operation date for 5 to 6 months. My oncologist was happy to refer me to Imperial for a second opinion in the hope of having the op much earlier but this has come back in agreement with the plan. I am now going to be referred to Basingstoke and in the meantime will have a CT scan to check for progression. I'm also going to complain to the St Mark's PALS about the 5 - 6 month wait for an operation and proposing to use, at the time, unnecessary chemo.
I'd be really grateful to hear from others who have undergone or about to undergo a CRS & HIPEC op and find out if you needed to have neoadjuvent chemo, how long you had to wait for the op and where you had it. I am an NHS patient but I'd love to here from both NHS and private patients.
Thanks for making it to the end of my long post.............