Profile

Mrs ALS

Regular user
Female
ABOUT ME

Hi, I'm a retired Community Nurse, married, Mother of two grown up children. Dog lover! I had a different (unrelated) cancer diagnosis in 2010 and have struggled to come to terms with a second diagnosis and all that brings.
Diagnosed with stage 3 sigmoid colon cancer in Nov '19, initially thought to be a diverticular abscess. The tumour was stuck to my bladder with five adjacent lymph nodes affected. Initially I was told I'd need total pelvic clearance and would have two ostomies, however surgeons managed to resection both bladder and bowel, 60 lymph nodes were removed. Staged as T4N2M0
I started 12 rounds of FOLFOX chemotherapy in March 2020 just as first lockdown was announced! Numerous side effects after 3rd cycle, including admission to hospital with a blood clot on right lung and anaphylactic reaction to Oxaliplatin on my 6th cycle when I ended up in A&E. Further 6 cycles with 5FU only.
Two post chemo scans and annual colonoscopy in March 2021, all clear.
August scan showed a kidney 'lesion', I was referred to urology at my local hospital, for a CT renal scan in September. At a follow up appointment a week later I was told by the urologist that the lesion was cancer! I contacted my team at the RVI for a second opinion. One of their urologists has reviewed my scans and his opinion is the lesion has been there sometime and has NOT changed! Currently awaiting an appointment for a telephone consultation with second urologist.
March 2022 - 2nd year surveillance scan clear. Kidney lesion remains unchanged. Telephone consultation with urologist arranged for next month.