Regular user
Male 74 y.o.

DIAGNOSED WITH RECTAL CANCER may 2013 .28 sessions radiotherapy plus 5fu chemotherapy through picc line. In october 2013 had operation,low anterior resection with colorectal anastomosis. temporary iliestomy. Two months later had 18 sessions chemo as sweepup. September 2014 had iliestomy reversal.After initial six sessions of chemo in january 2014 Isuffered severe pain in left shoulder which travelled down arm into wrist and hand. On pain killers for two weeks, after which Iwas left with nerve damage in left hand. At first nerve damage was thought to be side effect of 5fu chemo ,but after being seen by neurosurgeon and having undergone two sessions of nerve conduction studies ,a neurologist finally diagnosed Parsonage/Turner syndrome,which is Jextremely rare and there is little can be done for it.I was told that most cases resolve themselves within 3-5 years.June 2016 scans of thorax, pelvis and admonen clear. June 2016 scan revealed spots on liver. Colonoscopoy clear. July 2016 sent for MRI and liver biopsy.SEPTEMBER STARTED chemo regime FOLFERI ANDCETUXIMAB 12 FORTNIGHTLY CYCLES. Suffered severe allergic reaction to cetuximab a few days into 1st cycle so it was withdrawn fo next 2 cycles and put on course of antibiotics, creams and gels to treat horrible rash ,scabs ,blisters etc.Meanwhile my course of folfiricontinued,but due to excruciating bowel movements during cycle 3 my oncologist withdrew IRINOTECAN to give my bowels a chance to heal .Things have now improved considerably, so my onc will probably put me back on irinotecan next cycle.I am now back on CETUXIMAB and hoping the horrible allergic reaction does not recur.