Looking for a Support Group
I wonder if anyone knows of a support group in my area of South Bucks? I would so like to break this feeling of isolation which seems to have hit me 2 years into this bizarre adventure. I am having a break from my new maintenance chemo regime following my ileostomy reversal last Oct as I’ve been coping with intense discomfort, they think caused by the chemo. It is getting better slowly but I also suffer severe small fibre neuropathy. It’s so draining.
I have had HIPEC, removal of Appendix (primary), spleen, full hysterectomy, 2 parts of my bowel removed and peritoneal lining. 28 Chemo treatments so far. Yes , I’m still standing! Medical team have done so much to get me through this but just now, the constant pain of neuropathy and post reversal pain-in-the-@*#& has got the better of me.
I would really like to find a support group in my area made up of fellow brave warriors. Perhaps I need to start one? Sending the good stuff out there....