Lung/liver op???? Still waiting.....
....not sure where we are now really.
The liver team (Birmingham) said today that they now need a MRI to see if they can find the liver lesion (cant see it on 31 Jan CT).
The lung team (Stoke) need an up to date lung CT to see if they can find their nodule (no lung CT since November). We have been waiting two weeks for a lung CT scan after Bham only did abdomen/pelvis on 31 Jan.
If they find it the liver team wont operate unless the lung team say they can/dont need to operate.
The picc line is out and folfiri/cetuximab has stopped after 11 treatments (it will be 3 weeks on Wednesday since the last one)
If no operations at all the Oncologist said to keep Cetuximab funding C needs to be back on it after 6 weeks which is 3 weeks this Wednesday. Also he says he needs plenty of notice to order the chemo/Cetuximab in and fit him in.
Time is ticking by. We naively thought at least we would have a peaceful break of 6 weeks between chemo and liver op. We are spending our days near the phone either chasing or waiting for a call back. It is very stressful. It sounds like good news that they cant see anything on the CT scans but as our Oncologist is always saying 'just because you cant see it dosnt mean its not there'.