General Discussion

Rockford

Remission

Just wondering how many are still on the forum who are in remission and past the 5 year survival rate.
For the others still battling this cancer my very best wishes to you in the journey we all face.
:x::x:

Baxter2

It’s so good to read of the 5years plus survivors!

Gives such hope to us all!

K💚💜💙💛❤️

Dan-888

Thank you for tagging me @Lizalou !

You are absolutely right that I only pop in very occasionally, 6.5 years after diagnosis as stage-3 cT3N1M0 (Oct 2011) and 6 years post operational removal of my only tumour (Apr 2012).

My profile has as full a summary as I could muster.

Hope that I’m one more with good news for @Rockford, @brighty08 @1234annie @terri m @charleyb @Baxter2 .

Without doubt, there will be many others out there who have left or have never commented or perhaps never even logged in to this site’s forum at all.

All my very best to all!
Cheers! Dan

1234annie
Quote from @Gypsy:
Hi @terri m
Just to say I am 6 years clear since recurrence of single tumours in liver and lung that were both found and removed in 2012. I am very fit and well.

Fab news!!!

mem

In 3 months time @Bear G will be at that 5 year milestone after receiving an advanced diagnosis @Rockford :x::x:

RosemaryA

@Rockford, @brighty08 @1234annie @terri m @charleyb @Baxter2 @Gypsy @Lizalou @"Dan-888" @Jessica @DianeS @andyc @mem @Bear G (hope that's everyone!) - great to see so many good news stories, let's pass it on!
There are some stats from our friends over at CRUK which show that five-year age-standardised survival for bowel cancer in men has increased from 25% during 1971-1972 to a predicted survival of 59% and from 24% to 58% for women in England and Wales. (http://www.cancerresearchuk.org/health-professional/cancer-statistics/statistics-by-cancer-type/bowel-cancer/survival#heading-Two) We'll see if we can find any more recent data but as a trend over time, this is definitely encouraging.
There's much more to do of course: do follow us on social media to follow and support our current campaigns.

Lizalou

But importantly @RosemaryA and everyone else. ....

1 Those are all people who were diagnosed over 5 years ago of course....New treatments become available all the time.

2 Most statistics seem to include eveyone including people like my father who was in his late 80's at diagnosis. What about people like me with no other underlying health problems to cause complications.

RosemaryA

Absolutely true @Lizalou - great points both!

DianeS

So true @Lizalou , and the stats include all the people who die of non related cancer issues. :x::x:

Smiley2

Some of you 'Forum Oldies' may remember me! :) Just to add to your list that my husband was diagnosed with Stage 3 T4/N1 in 2012 and is still in remission too :x:

Bear G

Hi @Rockford
I haven’t been on much for a while but wanted to add to this - I was stage 4 at diagnosis with multiple mets in liver and both lungs. At the end of May I’ll see my 5year anniversary and am still going strong!
Big hugs
Bear
:x::x:

Jane39

@Bear G ... reading your profile has just given me some very much neeed positivity .... wish I had your doctors!

Bear G

There’s lots to be positive and lots to hope for @Jane39
Sounds like your team are doing good things even if your oncologist could do with a better outlook! I’m working on a project to try and change the language around cancer, watch this space!
:x::x:

Jane39

Thanks @Bear G . My oncologist has a great reputation but not the best communication skills. I dread every consultation . Working as a clinical nurse specialist I’ve certainly learnt a lot being on the other side ! :x:

angepange

@Rockford , I know you asked how many were passed the magical 5 year remission mark. I’m nearly nearly there. In Oct 18 I will be 5 years from diagnosis and hopefully still in remission. Pray I get there. Love Angie :x::x::x:

Rockford

Many thanks Dan 👍

Quote from @"Dan-888":
Thank you for tagging me @Lizalou !

You are absolutely right that I only pop in very occasionally, 6.5 years after diagnosis as stage-3 cT3N1M0 (Oct 2011) and 6 years post operational removal of my only tumour (Apr 2012).

My profile has as full a summary as I could muster.

Hope that I’m one more with good news for @Rockford, @brighty08 @1234annie @terri m @charleyb @Baxter2 .

Without doubt, there will be many others out there who have left or have never commented or perhaps never even logged in to this site’s forum at all.

All my very best to all!
Cheers! Dan

Rockford

Many thanks everyone for your replys and very best wishes to those still fighting the battle.
:x::x:

Terrish

Hi @Rockford - I was diagnosed in 2015, and currently waiting for the 3 year scan date. Not quite your five years, but another who previously used the forum on a daily (someones hourly!) basis and who has now dropped off. I come on now and again and your post has reminded me to pop back in again more often.

Polly 1

Hi @Smiley2 just realised you have popped back recently for a quick visit! Good to hear from you again and so glad to hear everything is going well for you and hubby 😊
As you can tell from my profile C and I are still plodding on. He's back on chemo at the moment so we dont lose Cetuximab funding while we wait to see the lung surgeon. CT scan reports seem to take even longer these days!
From a forum 'oldie' :x::x:

Smiley2

@Polly 1, I’ve been popping back every now and again to check up on how you oldies are getting on! 😊 Glad to see that you are both still plodding on and I’m sure that you’re still fantastic at taking lots of notes and staying on top of it all. We are still not being complacent and hubby is due another appointment in September (Although I expect that I’ll have to chase that one up again! 🙄)

Sending lots of love to you :x: :x:

Pitstop

Sorry for a late response, I don’t come on the forum as often as I did. I’m not in remission @Rockford but was diagnosed as stage 4 in Dec 2013, I have no intention of popping off yet but im on palliative treatment :x::x::x: