Hi, my husband was supposed to have a routine scan in February but he was 'forgotten' and ended up having the scan on the 6th March. He was then asked to have a PET scan as the CT scan showed a nodule in his right lung. We had to wait 2 weeks for the PET scan results and the MDT meeting to be held because of Easter, then we were told his results were being referred to another MDT meeting which was held today. He has had a telephone call today to be told he now has to have another CT scan so they can take biopsies. Which could be up to another 2 weeks! Then of course we will be waiting for the results again. There is such a lack of information coming from the hospital and the nurse my husband spoke to this afternoon was rude and uncaring and 'accused' him of looking on the internet. Is it any wonder?! My husband arranged an informal meeting with one of the doctors last week which is due to take place this Thursday. The nurse asked him if he still wanted the meeting 'as the doctor won't be able to provide any more information than she already has'. Not sure what information she thinks she has provided as we have loads of questions and you don't generally think of them during a 2 minute telephone anyway.
He has been told during a phone call that he has 3 nodules (not 1) and in both lungs and he needs a CT scan so they can take biopsies. We don't know how big they are except that the biggest is 1cm (is this big)? Or where they are in the lungs.
The lack of what seems to be urgency and information is so frustrating and frightening. I'm struggling to put one foot in front of the other let alone getting on with our everyday lives. Plus that's just me, my husband must feel 10 times worse!
I'm sorry, I know this post is manic, but what I need to ask is, is the waiting and procedures he is being asked to have usual? Why does he need to have biopsies? What will the biopsies show?