Should I keep chasing HIPEC?
Hi, I have a bit of a dilemma and would value the opinions of those of you who have been in a similar position.
I was turned down for Liver resection by the Royal Free who were concerned about 2 nodes on my peritoneum. Following a long discussion with my Oncologist I asked to be referred to Basingstoke to see about the possibility of HIPEC for the peritoneal mets and feasibility of Liver resection as my Liver mets are still shrinking. They asked for a Liver MRI and the Liver surgeons said that it would be a complicated procedure because the largest met is right next to the bile duct and there was a high chance of bile leakage but they were prepared to consider it depending on what the Peritoneal surgeons said. They felt that I wouldn't benefit from the procedure and have said No.
I half expected it although there was a small glimmer of hope as the Liver surgeons replied first but now I'm not sure what to do next. My Oncologist is happy to refer me somewhere else to review my case if that's what I want but I'm not sure if I should keep pursuing it? My gut reaction is to try and see what Imperial or The Christie say but as my Oncologist asked me - would I accept it if they said No as well?
Part of me says that I have been pretty well on my chemo and should just run with it as I can live a pretty normal life at the moment - maintenance will be Cetuximab and 5fu 2-3 weekly depending on my counts and I know this is very do-able. I am grateful to be so well and my worry is that if I chase a tiny chance of cure then I could be shooting myself in the foot and possibly end up in a worse position ......But.......there is a small chance of a cure and the other part of me feels that I should pursue that.
I have twin girls who are 18 later this year and I want to be around as long as I can for them and my husband and recently widowed mum.
I know I have to make up my mind on my own but would value any advice/opinions.