Cetuximab rash getting me down
Well how are we all folks?
I don't post that often on here and suppose I'm more selfish in just posting queries when I want to know something. So apologies for that.
I'm 18 months in from a stage 4 diagnosis with peritoneal mets and some of the blighter is around my small intestine, which makes me inoperable (Christie and Basingstoke have rejected me for HIPEC).
I'm leading a pretty fantastic life with my wife and for the most part, I even forget I have this thing called cancer. Attending for treatment is a non-event and has just become a way of life.
I'm on maintenance chemo of Cetuximab and Capecetabine(sp) which I have every 2 weeks and am 32 cycles in.
But i am starting to struggle with the side effects of cetuximab. It is really the only side effect I experience, namely rash and pimples/pustules.
This covers my legs and abdomen and face. They are a bit painful especially on the face. Luckily I sport some facial growth which hides the visual spectacle, but they hurt. even splashing water on you face hurts around my eyebrows and jaw/cheeks where the rash and pimples lurk. The urge to pick is high also.
I'm trying to avoid slapping steroid based creams on as I have had a bit of a lifetime of this with a background history of eczema/psoriasis and find this just thins the skin down so much that if I do ever scratch I just end up bleeding everywhere.
Maybe there is no miracle solution and I feel better just having a moan about it
When I have a cycle of treatment my skin clears up lovely and is great for about 5 days, but in the 2nd week (where I am now) it all kicks off and I get a bit down with it.
Anyone got any experiences to trade in this dept?
Have recently started to use essential oils with a little benefit and certainly my psoriasis is behaving very well, but the symptoms from the use of the cetuximab seem more pesky.
Thanks for reading my waffle and moan.