Just Diagnosed

Adnyl

I feel lost, terrified and out of control

I did my Scottish bowel cancer screening test last month which came back positive.

Yesterday the colonoscopy showed a tumour in my bowel. They took a biopsy And bloods and I've got a ct scan and mri to come in the next couple of weeks.

I've been in tears much of the past 24 hours.

What I'm understanding is that basically they found something yesterday. The biopsy will say if it's cancerous. I've an mri scan and ct scan to be done. Only once they've got all the results will they decide on a course of action. As long as all done within next 2 weeks i should know more on Fri 31st ... it seems like a lifetime away.

So many thoughts going round in my head. How long has it been there, how fast do they grow. Will it have spread. I don't smoke, drink in very small amounts and eat healthy high fibre, low processed food diet.

I'm sitting here in tears again. I want to be normal and just get I with things but just feeling so upset. Feel stupid being so upset and completely useless and unable to control my body or emotions.

Karen17

Very sorry to hear your news @Adnyl. Hopefully if you've been doing the screening since age 50 it will have been caught early. Thinking of you :x::x:

Adnyl
Quote from @Karen17:
Very sorry to hear your news @Adnyl. Hopefully if you've been doing the screening since age 50 it will have been caught early. Thinking of you

Yes I've done it every 2 years so this was my 4th test. Can't help wondering if it was missed last time. What if it wasn't bleeding last time so got missed.

I'm so scared.

Ct scan on Wednesday 22nd
MRI on Friday 24th
Case conference on Friday 31st ... that's another 2 weeks of this not knowing what's going to happen or how bad it is ... and imagining every twinge in my guts is bad

Baxter2

Hi @Adnyl

I'm also sorry to hear your news. I'm sure it's feeling very overwhelming just now but it looks like there's a clear plan to gather all the information required to formulate the best treatment plan for you. You may not feel it just now but I'm certain over the coming days and weeks you'll find the strength to take on this new challenge positively. In the meantime, we're all here for you anytime.

Lots of love and good wishes,

K💜💛💙💚❤️

charleyb

Hi @Adnyl i`m so sorry to hear that your results came back as cancer, but like others have said your team will start getting all the info they need to formulate a brilliant plan of attack. This first bit is the worst, the waiting and panic and devastation. But i promise when the plan is in place you will start to feel better. My hubby was told at the colonoscopy that in his opinion it was cancer, and then while we were waiting for our consultant appointment we had a letter thru for oncology, so by the time we had our appointment we had had a chance to get our heads around it.
And a year later I`ve just been thru the two week hell again with my dad who has recently been diagnosed with CLL lymphoma so i know exactly how you are feeling. Hang in there, and please ask for support from your team. Big hugs :x::x::x:

Karen17
Quote from @Adnyl:
Yes I've done it every 2 years so this was my 4th test. Can't help wondering if it was missed last time. What if it wasn't bleeding last time so got missed.

I'm so scared

@Adnyl. My surgeon thought my tumour had been there when I did my 1st screening at 50. Caught at 2nd screening.
Try to keep positive. I wanted to be positive and optimistic but at the same time wanted to be prepared for the worst. A difficult balancing act!
A step in the right direction with your scans this next week. :x::x:

determinedjoan

Sooo sorry Adnyl; not what u were hoping to hear. We are all here to support u. Glad ur son & friends were with u. Thinking of u & wishing u all the v best with treatments. Love & hugs

Adnyl

An appointment has arrived today to see my consultant, this is on Wednesday afternoon, my CT scan is in the morning. My MRI is on Friday afternoon. They've got my case conference scheduled for 31st.

Any idea what the first meeting with the consultant will involve?

mandajayne

hi there,, welcome to this lovely site.. even though you dont want to be here!!.. first of all... dont google... bowel cancer is treatable.. my hubbie got diagnosed with advanced bowel cancer in feb.. he has just finished 25 sessions of radio/chemo.. had an op for a stoma... which he got on with really well.. got a scan on 20th aug to see if tumour has shrunk enough for op... so its all about tests/waiting/tests/waiting..... live for the day.. and just know that they will do everything they can for you.. good luck :x:

Karen17

Hi @Adnyl
I saw my consultant (surgeon) before I'd been for CT. He just wanted to discuss what the general plan was including rough timescales and gave us a chance to ask questions. He was very matter-of-fact and gave me hope. You've a busy week ahead but hopefully getting closer to a plan. :x::x:

determinedjoan

Yes, v best of luck with all the investigations & appts :x:

Adnyl

What information do each scan give?

I've my CT scan on Wednesday morning and a consultant appointment on Wednesday afternoon. My MRI isn't until Friday afternoon. Will he know more on Wednesday afternoon following the CT scan in the morning? :x:

Karen17

Hi @Adnyl. Noticed you hadn't had any replies yet. Sadly I'd be surprised if your consultant has the results of your CT scan by the afternoon. Others on here say it takes at least 10-14 days and others much longer. My specialist nurse was good at giving me the current approximate timescale in our area (or ask the people doing your scan). I got the results of my last CT (November) in 12 days and feel that was quite quick. They would probably want to discuss at MDT meeting first before speaking to you so that they've got a clear plan of action.

Types of scans confuse me too but have been discussed before on this forum. I also used the Macmillan website (searched for Scans) and they list almost everything with descriptions. Hope this helps. :x::x:

determinedjoan

V best of luck this week Adnyl :x:

Adnyl
Quote from @Karen17:
Hi @Adnyl. Noticed you hadn't had any replies yet. Sadly I'd be surprised if your consultant has the results of your CT scan by the afternoon. Others on here say it takes at least 10-14 days and others much longer. My specialist nurse was good at giving me the current approximate timescale in our area (or ask the people doing your scan). I got the results of my last CT (November) in 12 days and feel that was quite quick. They would probably want to discuss at MDT meeting first before speaking to you so that they've got a clear plan of action.

Types of scans confuse me too but have been discussed before on this forum. I also used the Macmillan website (searched for Scans) and they list almost everything with descriptions. Hope this helps.

My nurse said that my case conference will be on 31st as long as my CT scan was before Friday, which it is :x:

Karen17

@Adnyl Do you know if it's a surgeon or an oncologist you're seeing on Wednesday? My guess would be that your nurse has a fairly good idea of timescales in your area so they probably are aiming for the 31st. Fingers crossed :x::x:

Sarah44

Just wanna say @Adnyl that waiting for results is sheer torture. My hubbys Nurse said to us when he was diagnosed but waiting for scans that this was the worst bit. She said no matter what the scan says, as soon as you know results and the treatment plan it will get easier. She was absolutely right and I have never forgotten what she said. Take care :x::x::x:

SallyJ

I am also from Scotland and have recently been through this. In May BS test came back showing abnormal result. Was invited for colonoscopy in June which showed malignant tumour. Met the Colorectal nurse who told me I'd need an op to remove part of bowel and a CT scan to see if there was any sign of it elsewhere like liver or lungs and lymph nodes. CT scan was inconclusive but no sign of cancer in liver or lungs. Met the surgeon and had op in July and they removed the tumour and some lymph nodes by the tumour. One lymph node had cancer in it so I will be starting chemo next week. Please try not to worry about it, the nurses are really good at explaining what will happen. Are you going to Ninewells in Dundee or Edinburgh? :x::x:

Adnyl
Quote from @Karen17:
@Adnyl Do you know if it's a surgeon or an oncologist you're seeing on Wednesday? My guess would be that your nurse has a fairly good idea of timescales in your area so they probably are aiming for the 31st. Fingers crossed

I believe it's the surgeon :x:

Adnyl
Quote from @SallyJ:
I am also from Scotland and have recently been through this. In May BS test came back showing abnormal result. Was invited for colonoscopy in June which showed malignant tumour. Met the Colorectal nurse who told me I'd need an op to remove part of bowel and a CT scan to see if there was any sign of it elsewhere like liver or lungs and lymph nodes. CT scan was inconclusive but no sign of cancer in liver or lungs. Met the surgeon and had op in July and they removed the tumour and some lymph nodes by the tumour. One lymph node had cancer in it so I will be starting chemo next week. Please try not to worry about it, the nurses are really good at explaining what will happen. Are you going to Ninewells in Dundee or Edinburgh?

Hi Sally. I believe I'll be at the Victoria hospital in kirkcaldy :x:

SallyJ

I'm not sure how they do things there but I believe we are lucky to have an NHS up here that does get things moving fairly quickly. No question is a silly question by the way - I have asked a few :D - I blame my fibromyalgia for it though :p I am more than happy to answer anything you have concerns about as I have done a lot of reading - I am in the category of people who need to know absolutely every outcome possible so nothing surprises me further down the road. Keep your chin up and try to laugh and be positive - it helps with healing :x::x: