Had my consultation with Christies and knock me down with a feather Christie’s MDT are suggesting I could be operable as the primary tumour has shown good regression from chemo. ........very different picture than my oncologist painted with “ stable” scan a few weeks ago
No mention of shrinkage or ever considering surgery.
They were surprised I hadn’t been kept on chemo given my response and believe it’s the surgeon I should have dialogue with and not the oncologist as it’s not her decision. Professor O Dwyer will write to my oncologist and directly to the surgeon to suggest they relook at my case and if they are not willing to operate then I can request a transfer through the Scottish health board to Christie’s
She believes I will end up with an ileostomy but that this would eventually happen anyway. She thinks we should park PIPAC for the time being and concentrate on debulking primary tumour and deal with other things later.
Loads to take in and questions to be asked in my next oncology update 26 Sept.
Disappointed that my oncologist seems to be acting as a first line of defence in getting to the surgeon and has never told me of any shrinkage.....wonder whether peri mets are still as bad ....I think she has decided the course of action without giving me all the information !!!
Just shows why a second opinion is necessary.
Christie’s will in all likelyhood have PIPAC up and running by the end of the year so hang in there people who are interested. Prof is also willing to advise on best places in Europe.
Any advice or comments welcome especially for what to expect of an ileostomy and any prep for potential surgery
Away for a large glass of something to digest all this !!