Life with bowel cancer

cara

scared

HI this is my first time on a forum. I was originally diagnosed with stage 3 bowel cancer in oct 2017 which resulted in an emergency operation to remove 20 cm of my small bowel and 14 cm of my large bowel which had perforated. I had lymph node involvement 2 out of 25 were affected so I was put on chemo for 6 months. which my body didn't like and I was pretty much bed bound or in hospital for 6 months. I also had a mark on my liver which they didn't know if it was cancer or not. After chemo my ct scan came back saying I was clear of cancer and my marks on my liver were said to not be cancer but 6 weeks later a MRI scan has shown I now have 2 tutors on my liver one 5mm and one 1.9 cm which are cancer. Ive been told they think they can remove them by a liver resection and the chance of it coming back is 50%. I know I am in a much better position than most people and for that I am great full but all I've done since being told is cry and I'm so scared that I am going to die. All you hear about is 2yr and 5yr survival rates which scare the hell out of me. I don't know how to feel positive. One thing for sure is I have name the cancer Eric an Eric is not allowed to stay and he is not allowed to come back. I want to live. has anyone had any similar experiences? Is there hope for us? I really want to beat this. Any advice would be greatly appreciated. Thank you :x::x:

Tiffany

Hi @cara. Welcome to our forum. So glad you have found us and the courage to post. I have moved your post to the topic "Life with Bowel Cancer" as I think you will get more response from there.

You will find many fabulous people on here from all walks of life with a lot of advice and support to offer so you have come to the right place.

Please don't google or get upset about statistics. I am sure many people will come along soon enough to tell you the positive results that they have had. My husband is one of those people. Please click on my name to read our story. There is hope.

Thinking of you and sending a cyber hug your way. Lots of love, Tiffany :x:

determinedjoan

Hi 👋 Cara,
A warm welcome to this amazing forum; u hv defo come to the right place for up-to-date info, support & encouragement. Hang on in there; sounds like they hv a good plan for u. Love 💕 & hugs 🤗 :x:

Lizalou

Hello and welcome @cara

It must have been a horrible shock to find that your liver has been affected after struggling so much in the 1st few months. You were really unlucky with the chemo complications.

But concentrate on the fact that the specialists are planning a resection. Definitely don't look at the statistics. ...they will inevitably be several years out of date and will apply to the frail elderly, so that isn't going to be you!

I think @DianeS was in your position and I hope she can reassure you.

Best wishes :x:

Gypsy

Hi@cara. Hugs and more hugs to you for all your fears, anxiety and tears. Yes, there are people in a similar position to you and I am sure that they will post for you and many are doing so well so I hope that will give you encouragement. There certainly is hope for you and what I would urge you is to not dwell on those statistics because it just is not helpful and just drags you down and anyway, you are you and not a number! I had a recurrence of single tumours in liver and lung a year after my bowel diagnosis so I totally 'get' how horrible this is for you as will so many others on here and understand the shock you have had. My tumours were both removed in quick succession (liver then lung) and I then had chemo that I had not had originally after the bowel op. I absolutely thought as you do (or as you are fearing) that it was 'all up' with me but I was wrong as I've been clear now for 6 years. I'm gutted that this has happened to you but after this initial shock you will pick yourself up, dust yourself off and go in for the surgery that will get rid of Eric the beast and everyone on here will be behind you in that. We're here with all understanding whenever you post.
Lots of love, Gypsyxxxxx

DianeS

Hi @cara, thank you for tagging me @Lizalou. I was in a very similar position to you two years ago. I had a recurrence in my liver 5 months after finishing chemo. Due to there being one small tumour I had ablation, and have been NED for two years. Your fears are understandable, I was scared and disappointed, and was in shock when I was told it had come back. Somehow we just get on with it, so strange how we accept it and carry on. I wish you lots of luck and here if you need any questions answered. Love Diane :x::x::x::x:

cara

Thank you all for taking the time to comment. Your stories and kind words mean so much and give me strength and hope. Thank you :x::x::x::x: