Update: 18 months from diagnosis of Stage 3 CRC
Hello. I thought I'd provide an update which is positive news (overall!)
After my diagnosis in January 2017 as Stage3 and living with an ileostomy since then, in July this year I underwent reversal surgery. The reversal was a little unusual in that due to history of Crohn's disease they removed almost all the remainder of my colon and left about 1-2 feet of colon/rectum. The surgery created an ileo-sigmoid anastomosis. The reason we did this was to reduce the risk of cancer recurring in the colon where it was scarred from previous inflammation. My lower colon/rectum is in good shape.
This surgery is a risk as Crohn's may come back in my left-over colon and we don't want to risk high powered drugs if it does, because we believe they may have contributed to me getting bowel cancer. If this happens and we can't control with modest drugs, I'll probably opt for a permanent ileostomy.
In any event, here I am 8 weeks post surgery, which was extremely grim due to lots of infections. Thankfully after 3 weeks in hospital and 2 weeks home-care (IV antibiotics) I am in much better shape now.
My colon is acting 3-4 times a day and my energy has improve greatly. I return to work tomorrow, and will take it easy for a few weeks/months depending how I get on.
My pre-surgery scans and CEA also came back normal, so that's great.
I'm very apprehensive to sound too positive as I've experienced and witnessed how fragile our health is, but here's hoping!
Best wishes to everyone reading this forum