Decembeard

Life with bowel cancer

cara

PET scan info

Hi I was wondering if anyone could reassure me. I am having s pet scan next week as the MRI scan has shown 2 small liver mets which the oncologist and liver surgeon have both said they believe they can operate . I can’t stop worrying about the result of the pet scan now they’ve said they can operate I’m scared the pet scan will show that they can’t . I keep trying to tell myself that I’ve had 6 months of chemo and that should have killed any rouge cells but I can’t stop worrying that the pet scan will show something that the mri didn’t . Even though my oncologist has said I don’t have cancer anywhere else. I wish I could just be positive but all u keep thinking is I’m not ready to die and this beast needs to go :x::x::x:

Bear G

Hi @cara
What your feeling is completely normal, we all go through this in much the same way as you. Once you have the PET scan results and have a clear treatment path then you’ll feel better, whatever the results are.
The PET gives a different view on things as it shows how active these liver mets are, the key thing is that they’re small, the PET scan won’t show any difference in size, just how active they are. Your team is being very thorough on your behalf and making sur ether aren’t any surprises when you have your op.
For further reassurance could I suggest also posting your concern in Ask The Nurse to see if they can offer any expert advice?
Fingers crossed for next week and big hugs
Bear
:x::x:

Lawsey

Dear @cara

Not long to wait now, and agree they are being thorough and a PET scan will help them with assessment and planning so it is a good thing.
None of us can predict the future but I really hope they come back clear and they are able to arrange an operation.

I have some comparables e.g. stage 3 bowel surgery and now because of one solid met on liver stage 4 - awaiting PET scan and hoping for surgery - its tough isn't it. You want the thing to go away e.g. be cut out

I am also frightened (and very irritable) I guess we have no choice but have faith
:x::x::x:

bettebette

@cara @Lawsey I expect almost everyone would agree that the waiting is one of the hardest parts, there always seems to be something we are waiting for; however of course this means that we are constantly being checked and that is a good thing (although sometimes it doesn’t feel like it)
My feelings about having a PET scan are that it gives your team more knowledge about your circumstances and therefore they are more able to prescribe the best treatment.
The scan itself is quite easy and the contrast is safe (if that’s any consolation)
Mine found no further concerns re cancer but raised some questions about thoracic inflammation (I have lung problems not associated with the cancer), that enabled the thoracic specialist to contribute to the MDT and I was reassured by that.
I hope that the PET scans go well for both of you. Best wishes.

Lawsey

I have no problems with scans know about the contrasts - the purpose of them etc

Its rather the 'team' a term everyone keeps using - is never clear who is in it, no contact, constantly leaving or away and I have been left for months feeling ill - being ill without treatment

It is clear that the NHS struggles on and the standard of care each person receives 'the plan' varies greatly from one hospital to another

bettebette

@Lawsey I agree with you about the concept of a ‘team’, in my case I use it generically to cover the staff/medical people who are involved with our illnesses. I have struggled once past the initial stage of diagnosis/treatment to have much idea of what my ‘plan’ is meant to be, I have made notes constantly and I chase up everything with the specialist colorectal nurse (ie if I am told something will happen in 3 or 4 weeks or similar) Have you been given a ‘named nurse’?
Re: the contrast comment, I was just observing that the PET contrast is different to some of the other contrast mediums which can cause allergies.

cara

Dear Lawsey,

Thank you so much for posting xx I’m finding it very tough . I agree the minute they told me I wanted them to cut it out there and then . Waiting is horrible . I’m trying to keep busy bought a puppy :) but it’s still so hard . But reading people’s posts is giving me strength and I know their is hope I just keep praying that I will be luckily . Have you got long to wait til your scan ? Mine is on Monday which happens to be my birthday I am hoping that it turns out to be a nice b day present that leads to the operation and hopefully a cure.

I hope u don’t have to wait too long and I hope that you get the operation xx sending big hugs :x::x:

cara
Quote from @bettebette:
@cara @Lawsey I expect almost everyone would agree that the waiting is one of the hardest parts, there always seems to be something we are waiting for; however of course this means that we are constantly being checked and that is a good thing (although sometimes it doesn’t feel like it)
My feelings about having a PET scan are that it gives your team more knowledge about your circumstances and therefore they are more able to prescribe the best treatment.
The scan itself is quite easy and the contrast is safe (if that’s any consolation)
Mine found no further concerns re cancer but raised some questions about thoracic inflammation (I have lung problems not associated with the cancer), that enabled the thoracic specialist to contribute to the MDT and I was reassured by that.
I hope that the PET scans go well for both of you. Best wishes.

Hi thank you for posting. I agree I am glad they are still checking for things. To be honest I can’t fault my oncologist whilst I was sobbing in a room she called the liver surgeon there and then to see if he would operate and she’s pushed things through as quickly as possible . It’s just scary having the big C but I am determined to survive it. My mum had cancer 36 years ago it wasn’t bowel cancer but cervical and against all the odds she beat it xx so there is hope for us :x::x:

bettebette

@cara best wishes for your scan on Monday - and I hope your birthday present will turn out to be the best thing possible 😊

DianeS

Wishing you lots of luck with your PET scan @cara we will be thinking of you love D :x::x::x::x: