General Discussion

1234annie

PIP Assesment

I've got this tomorrow, deep joy! Has anyone else had one? Will they even know what our chemo does to your body? :x:

terri m

Hi @1234annie .. Hope you are enjoying your new job.. I am officially retired now from the nhs. And will need to look for another little job soon... I get ESA support atm & they did say you could earn up to £85 oet week, which isn't a grest deal... Do you know how long you can claim ESA for? I have been in it since last June.. I realky would prefer to work then stay on this, but it is a great safety net to have until I find alternative work... :x::x::x:

1234annie

I think I will loose ESA now as I'm doing 25 hours a week. If you call them and say you want to try some work theyll tell you. My form said permitted work was less than 16hrs a week and earn less than £125 per week. :x:

EssexDan

What is PIP?

EssexDan

Thanks @RT54. I didnt have a clue what that was.

Baxter2

Good morning @EssexDan

If you use the search icon at top right, you can bring up a number of posts on PIP in addition to @RT54's helpful post.

Chris82 has a good post on this. Many of us get this benefit.

Best wishes,

Karen 💚💛💜💙❤️

lola14

Hi Baxter, had APR October 18, start more chemo this Friday. I'm not allowed to apply as I'm over 64, so unfair as I've worked and paid into tax and insurance which I feel discriminates me. Any other suggestions for my situation?

Baxter2

Hi @lola14

I'm glad you sound like you're recovering well following your surgery and getting geared up for chemo this week! Well done you! I hope it all goes well for you!

Unfortunately I'm no benefits expert, but I do know that Macmillan are meant to be very good in this respect. You can call them or contact online and someone will call you back to take you through things. Maggies centres also seem to have a good awareness of what can be done. I have to say, I was never made aware of any possible financial benefits by any health professionals or Maggies. I found it all out on this wonderful forum!

Let us know how you get on if you can?

Lots of love and very best wishes for Friday!

Karen💚💛💜💙❤️

lola14

Thanks Baxter.

lola14

Hi @Polly 1, PIP is only up to age 64. When you turn 65 its attendance allowance I now believe but I'm not sure if anyone with bowel/rectal cancer, APR operation has been awarded this? I would be interested to hear. Thanks, Linda

Polly 1

Oh I see @lola14 I thought you meant you couldn't get PIP at 64. If you can get it before 65 I think you stay on it?

I must admit I havnt read about anyone on the forum getting AA. Both my parents get it (higher rate) due to lots of different reasons that mainly come with old age. Once on it you don't have to be reassessed and in the first place it's a lot easier to get.

Good luck if you are trying to claim it though :x:

1234annie

Got my letter today @Polly 1 and they have taken pip away. I thought they had to give u 4 weeks notice before they removed it??

Polly 1

Oh dear @1234annie are you going to appeal?
Can I ask did you have the full award for daily living and mobility before or the lower daily living only? Just wondered if they had dropped you one stage or two in one go, seems very unfair anyway. Definately worth an appeal I think. Do they give you the number of points - did you only just miss it perhaps you can give them more info to up it a bit.
We havnt heard anything yet but there again for us it's only been about a month.
Thanks for letting me know :x:

Karen17

That seems so unfair @1234annie when neuropathy can affect so many everyday activities.
Good to hear you're enjoying your new job and they're being understanding :x::x:

1234annie

I was on full award for everything. So I've not dropped down they have just taken it away all together. They have not taken into account any of my mental health issues as I am under the clinical psychologist. It's shocking really. I think I will apeal just to remind them of what Ive been though!! I don't think you can actually see how someone is from a 30 min appointment so I will put all my comments in a letter to them. :x:

terri m

Hi @1234annie .. I was on chemotheraphy for my stage 3 bowel cancer, feeling rotton ect.. I was assessed during this time & didn't get awarded a penny.. Macmillan appealed. But to no avail I still was turned fown by 2 points.... To be honest. I think if you are a stage 4 & you are having ongoing treatment, you should automatically be entitled to it... You may find it difficult to apoeal. Unless you have strong evidence thsat you ate struggling to do anything. This may include that you are working.. Maybe worth a try fir you to apoeal. But I would say you wete one of the lucky ones to have this benefit while it lasted :x::x::x::x:

AMM31

Hi @1234annie
Sorry to read this. I was also stage 3, had full Pip for both components, awarded for 2 years without interview or phone call. After 1 year review, interview, and stopped completely.
My rep at Maggies submitted a Reconsideration letter, but to no avail. He said I only needed 2 points to go for the lower rate of daily living. I didn’t bother going for the full appeal, as didn’t feel it was worth the stress, as I was feeling a lot better. Seems a 2 year award is often stopped after the 1 year review.
:x::x:

1234annie

I'm not going to apeal but I am going to write a letter to them explaining exactly how my cancer and my treatment has affected my life. I needed help showering and eating on chemo and for a good while after as my hands were so damaged. I couldn't have gone to the interview as I was so poorly so I'm glad I didn't have too. I think I actually told them that on the phone. At one point I couldnt even wipe my own bottom or dress myself. It sucks that people with stage 4 have to go to a bloody interview and then get turned down or reduced rate. I think doctors should be making decisions rather than someone behind a desk. ❤

KarenE

My hubby didn’t get any PIP at all. He is stage 4 and this time last year he was in a wheelchair after having his pulmonary embolisms. It was due to our lack of knowledge as I didn’t know anything about it. We tried applying for a blue badge for was of parking with the wheelchair. During the process it said that he would automatically get one if he was claiming PIP. I asked at the GP’s how to claim and was told he could only be entitled if he had less than six months to live. I now know that they were talking about something else, but at the time accepted what I was told. I would definitely make sure I know what we’re entitled to if it ever comes to it again.