Share your top tops on diet + lifestyle for our new booklet.
Find out more here.

Life with bowel cancer

crawfj

Sad

Hi Everyone

Well had the colonoscopy and as suspected they found another spot on the rectum which they took a biopsy not sure why as we know what it is. Still confused saying I am a rare case and need to investigate further. Doing radiation now so I think one treatment at a time and keeping fingers crossed

Jen :(- xox

bettebette

@crawfj sorry to hear you are feeling so sad, the middle of the night is a horrible time. They need to check anything they find - but I am sure you know that. You are right to think “one treatment at a time”. Thinking of you :x::x:

DianeS

Morning @crawfj I hope you managed to get back to sleep. I remember being awake in the small hours and feeling so alone with terrible thoughts in your head. One step in the right direction is definitely the best way forward, and trying to concentrate on just that and not the next stage. The big positive is that they are being very thorough so that they can understand your case and give you the appropriate treatment. I was ‘non typical’ Dukes C, still to this day haven’t asked why, decided I didn’t want to know, but have gone through treatment and leading an almost normal life. Keeping my fingers crossed for your results. Try meditation to help you through the night, it really does help. Love D :x::x::x:

Mistyalpine

Hi @crawfj ... Jen, It's such a crap time for you. I know exactly where you're at. Its a case of adjusting to the life changing treatment yet again... and that's just crap when you've been getting on with life, trying to get back to 'normal' again...
Do you know what tumour type you had originally? For example..dMMR or pMMR?

Lizalou

How miserable for you @crawfj . Yes, one step at a time .....but that doesn't help when your brain is racing ahead and you want some answers. Others have benefitted from anti depressants, or as Diane suggests, meditation. I eventually asked to see a specialist oncology counsellor, which really helped.
:x::x:

Gypsy

Dear @crawfi Jen. I'm so sorry you are having such a rotten time and know that you are in pain too. Yes, I think one step at a time and one treatment at a time and hoping that it knocks it all back and helps to relieve the pain. Gentle hugs to you and I hope that you did eventually get some sleep. I must admit, I had sleeping pills for quite a while which helped hugely and there are other meds that can help too so do think about that and maybe ask your doctor? You feel better if you can sleep. With love and thoughts, Gypsyxxx

mem

You are going through such a lot @crawfi and I’m sorry to hear this. I hope the radiation goes as well as it can and I will also have my fingers crossed for you. One day at a time and we are here for you :x::x:

determinedjoan

Thinking of u & sending love 💕 & hugs 🤗 :x::x::x:

crawfj

Thanks everyone and isn’t Bowel cancer supposed to come back as a polyp in the first stage mine came straight back as a tumour can’t understand all this ☹️😢

Baxter2

Good morning @crawfj

Sorry to read of your sadness and also horrible insomnia by the looks of things! 'Investigate further' is the positive in this I think. It sounds like they're onto it and being very thorough.

Sleepless nights are horrible as the worries seem to be much greater than during the day.....how is that?

Sending lots of love and a big hug your way!

Karen💚💜❤️💙💛

crawfj

Thank you Karen

But just read your story and so inspired just hoping we can investigate further in Australia and don’t have to stay with the same team if they cannot provide help anymore. Good luck with your journey sending big hugs 🤗🤗🤗

Jenny xox

Quote from @Baxter2:
Good morning @crawfj

Sorry to read of your sadness and also horrible insomnia by the looks of things! 'Investigate further' is the positive in this I think. It sounds like they're onto it and being very thorough.

Sleepless nights are horrible as the worries seem to be much greater than during the day.....how is that?

Sending lots of love and a big hug your way!

Karen💚💜❤️💙💛

crawfj

Hi everyone

Well finished my radiation which lasted for 10 days and now on the chemo treatments for 6 months once a fortnight. On Folfiri and Avastin. Losing weight but don’t have any appetite at the moment was referred to a dietitian who gave a lot of eating suggestions but looking or thinking of food is making me feel nauseous. Got tablets but doesn’t do much I know I have to eat just got to keep pursuing this and be brave to face all the challenges along this journey why can’t they find a cure for this in this advanced world we live in. Sending big hugs to all xox😘🤗

crawfj

No I’m sorry I don’t know they just said it was rectal cancer and that they got it all xox

Quote from @Mistyalpine:
Hi @crawfj ... Jen, It's such a crap time for you. I know exactly where you're at. Its a case of adjusting to the life changing treatment yet again... and that's just crap when you've been getting on with life, trying to get back to 'normal' again...
Do you know what tumour type you had originally? For example..dMMR or pMMR?

Baxter2

Hello @crawfj

I'm glad your radiotherapy is finished and you're now on chemo. It does sound like you're struggling with it though so please speak to your team about trying a different anti emetic medication. Folfiri and Avastin should be giving your cancer a good beating so fingers crossed it works some magic for you!

Sending lots of love

Karen💜💛💙❤️💚

Gypsy

Dear @crawfj . Can you get hold of some of the nutritional drinks that have all the necessary vitamins and minerals in them. These are at lest easier to swallow. I'm so sorry for what you are enduring and hope that you can feel a little better, at least on some days and then manage a bit of food- things that are very easy to eat. Hugs. Gypsyxx

mem

Hi @crawfj,
Radiotherapy is one big step now done and dusted and now you're on the good stuff too! I agree with Karen and perhaps speak with your team about different anti-sickness medication and are you on any anti-acid medication like lanzoprazole or omeprazole? They may be of benefit too.
I hope in time your symptoms start to settle. You are doing really well and I'm sending big hugs back :x::x:

crawfj

Thank you

Will keep going and keep fingers crossed that it’s all worth it in the end xoxo 😘