General Discussion

graham64

Pain seems to be getting worse

Hi there, this is my 1st post and is mainly as I'm not making the progress I was hoping for and would really welcome your experiences if similar to mine.
I had my operation just over 2 weeks ago and came home Wednesday last week. I'm getting on really well managing the bag side of things with as yet no disasters. It is a permanent op as my rectum was removed and the bottom sealed up, when I was in hospital my bottom didn't hurt hardly at all however, now it is really painful especially around the coxis area and hips, making it difficult to get comfortable, sit and/or sleep even after taking paracetamol. I was expecting it to be painful and take awhile but am struggling quite a bit at the moment. Am I expecting too much to soon ? Thanks in advance

Chelts

After such a major operation you will experience pain for a while yet. I have had pains in the bum since my op in August.
I would speak to your GP and ask him to prescribe co codamol as paracetamol is probably not strong enough on its own.

graham64

Thanks Chelts I appreciate the advice

Baxter2

Hi @graham64 and welcome to the forum!

I'd tend to agree with @Chelts although I've no experience of this particular op. I think it is early days and I guess everything is still healing. The better painkillers should certainly help but hopefully your GP should be able to reassure you all is well.

Will you let us know how you get on if you can?

Lots of love and best wishes

Karen💚💜💙❤️💛

graham64

Hi Karen, thanks and yes I'll let you know how I get on . When I was discharged I wasn't feeling any pain so wasn't prescribed painkillers to bring home..... I should have realised it would only be a matter of time before the healing pains started.
Best wishes and thanks
Graham :x:

Lizalou

Hi @graham64
Sympathy from me too although again I have no experience .

Are you able to take ibuprofen?If so you can alternate that with paracetamol in the short term. But see your doctor about a medium term plan (you don't want to add an irritated stomach to your woes)

The other thing to think about....are you actually feeling better and being more active? Could that be part of the trouble?
Have you worked out the best way to sit or lie? (I can't imagine how you get comfy!)

Take care :x:

KatieR

Hello @graham64 .....My husband had his op on the 30th of October He was told to avoid sitting on his bottom untill told otherwise !
Two weeks is a very short time following an APR .....many people may still be in hospital after two weeks !
Is your body trying to tell you you are overdoing things The whole hammock of muscles that supports your abdomen has been disrupted and the skin is still healing ( thats what we were told )
Do you take the Paracetamol regularly every six hours .....don't wait till you are in pain
We took Johns temperature before each dose of Paracetamol
When it was high we told the Colo-Rectal Nurse Specialist...
Got sent back to Hospital for a ultrasound scan which showed a little collection of fluid under the scar so they put a drain in and attached a Vacuum Pump to draw the fluid out
The pain went immediately and Iv Antibiotics have helped clear things up
Its been a setback but we have been discharged from the Cancer Specialist Surgeon and the Plastics Doc just wants a look at the wound in the new year
Be kind to yourself Rest if you are tired Be active when you need to be and keep in touch with us all on here
Cath :x::x:

graham64

Hi all thanks so much for the comments and help. I contacted my doctor today and he's prescribed a stronger painkiller to see how that goes. I have been on a short walk each day for 5 to 10 minutes to keep active and may have overdone it I guess without realising. It was a bit deceiving as I felt quite well when I got out of hospital. I'll keep in touch and let you know how I'm getting on.
Beat wishes
Graham :x:

MrsMoors

Hi Graham, hope your getting on better today :x:

KatieR

Hello @graham64 ...How are you getting on in 2019 ?
Cath :x::x:

graham64

Hi Cath, thanks for asking and happy new year. I've been a bit up and down really. I had to go back for a stay in hospital due to an infection hence the pain I was getting. I came home xmas eve with a drain in place to stop the cause of the infection and I do feel better in myself. Im finding coping with the immobility hard though and will be glad when the drain comes out on the 9th. I also found out I'm going to need mop up chemo once I've healed so 2019 will be a further challenge but hopefully the final outcome will be a positive one.
Best wishes Graham :x::x:

pippajane

Hi@graham64
I had my Apr in September and it does take a while to start to feel better
The pain from the sewn up bum cheeks actually got much worse as the scar tissue tightened as it healed, turning point was after the first five weeks
Four months on normality is returning although tiredness is still a big issue
Take your time it’s very early days :x::x:

KatieR

Hello @graham64 ..Good to hear from you I was getting worried
So you have had pretty much the same as John He had his vac pump discontinued last week and is so she happy not having to carry it about all the time They are maintaining a small hole to allow any fluid out and we are seeing the Plastic Surgeon on Tuesday...hopefully he wont want to see us again and we will be free and can get away in the Campervan
John is pretty much back to normal He washed three cars this morning before I had got up ! He is fast asleep now
He eats everything too much actually .likes plenty fruit and veggies and has no problems with his bag We use an emptyable ( is that a word ?) bag so it doesn’t need changing very often .'
Other than frightening the little dog when it does a loud trump ! !
Keep in touch Graham Perhaps you could write something on your profile Both to help you remember what happened and when but also for new people to read and learn from .
Cath :x::x:

graham64

Hi Cath,
I had my vac pump taken out yesterday and it's so good being able to move around without having to carry it with me all the time. I'm back at the Oncologist next week to find out what the next stage of my treatment will entail. It made me laugh about your little dog, especially as I was already thinking I would be the entertainment at family gathering with the children. That's a good idea about updating my profile, I'm new to using forums and wouldn't have given it a thought otherwise. Fingers crossed you can get away and have your break, It does sound like mine and John's experiences are very similar and it has really helped knowing I'm not on my own. Best wishes Graham :x::x:

graham64
Quote from @pippajane:
Hi@graham64
I had my Apr in September and it does take a while to start to feel better
The pain from the sewn up bum cheeks actually got much worse as the scar tissue tightened as it healed, turning point was after the first five weeks
Four months on normality is returning although tiredness is still a big issue
Take your time it’s very early days

Hi and thanks Pippajane,
I think it was the infection I had that really made my bottom hurt the most at the time. I'm still feeling it but it's just a bit sore now. It's 6 weeks since my op and I'm now okay sitting for about a hour or just over and can get out for short walks but as you say tiredness is the main thing and I have to rest quite a bit. My wife is on my case though so there's no chance of me overdoing it lol.
Best wishes Graham :x::x:

george1960

Did they not give you liquid Morphine and a drug called pregabalin.
Morphine and paracetamol for the pain and pregabalin for the nerve pains.
I had the operation last year
Lay on each side use extra pillows and don't sit on the bum it will feel uncomfortable for a while but you will get there.

:x:

graham64

Hi George1960, I had morphine after the op but then changed it to a different drug as I had a reaction to the morphine. I wasn't told what I was having other than they were for the pain or anti-sickness. I'm on week 7 now and able to do more , short walks etc. I found the valley cushion the hospital supplied a help when sitting although the soreness in particular around my coccyx means changing position a lot but I'm getting there. Many thanks Graham :x: