Firstly I must admit that I don't usually post on here, I tend to use it more as a research tool and a place to find inspiration when needed. Sorry about that but i have found alot of comfort from your words so thank you ❤
My boyfriend, Harry was diagnosed with stage 4 in August 2018 with distant lymph node affected and liver metastasis. Originally he had an emergency operation to remove the tumours (and relieve him from the bowel obstruction). Everything went amazingly, he recovered well and started chemotherapy (FOLFIRI & Panitumumab). Tolerated it well, terrible skin rash originally but this has been managed with 25mg minoclyclin every morning.
Things were going great,we are only 27 so are looking forward to starting a life (alongside cancer). The Oncologist has informed us that this is not curable and highlighted the aggressive nature of the cancer - we didn't allow this to bring us down and pushed forward with all the positivity we could muster.
During his first review the Oncologist revealed that the treatment has not been as effective as they hoped but it was Harry's choice what he wanted to do. A heavy blow. Scared and worried about missing out on first line treatment he decided to continue with the panitumumab. A few days before Christmas he was rushed to hospital with sepsis symptoms and omitted with the concern of an infection. Throughout this all Harry has struggled with bowel movements, bloating and severe abdominal pain. Recent CT scans, MRI and x-rays have revealed that the cancer has spread in the liver and small bowel as well as 2 larger tumours returning to the large bowel (one is 20cm). Surgery has been in discussion for the past week (Harry still in hospital, unable to tolerate much food and in severe pain, which is not being managed). This morning the surgeon arrived and said she doesn't want to operate as the chemo break is too risky for the liver. Harry's pain still isn't managed. We don't know how on earth we are going to manage this alongside a new treatment. A new treatment brings new side effects, how is he expected to manage this whilst feeling like his bowel will burst and not eating properly.
Any advise would be much appreciated. How can we help Harry's digestion? Any natural remedies? Should we be pushing the surgeons and oncologists more? I hear a lot about the Royal Marsden but when we asked for a 2nd opinion we got referred to the Royal free in London which wasn't very helpful. Should we still be pushing for a referral there and would this affect Harry's treatment in Broomfield (where he is currently treated)? Help!
Sending love and strength, Ellie