General discussion

hayley96

Worried I have bowel cancer

Hello, I'm a 22 year old female and for the last few months I've been back and forth to my doctors with symptoms.

My symptoms are, abdominal pain mostly in the lower right side, tiredness, lots of mucus in my stools, sometimes blood, nausea, weight loss and orange oil in stool.

I'm so worried! My doctor has referred me to see a specialist in march. I've had blood tests done which all came back normal, two stool tests and my first one my calprotectin level came back at 117 and the one I did last week came back at 886!

My doctor seemed very worried and said she's going to write to the GI doctor to try get me in earlier, I'm just so worried and just feel like I can't wait anymore😩, I feel like I've been waiting for answers for too long now!

What was everyone else's symptoms?

Adnyl

@hayley96 that's good news, this next 2 weeks will feel like they're going slowly, but try to stay positive, you're now heading in the right direction :x::x:

Freckles50

Hi @hayley96 so pleased to read you’re now seeing a specialist this month. Waiting for appointments is just awful and fully understand your anxiety. Keep us posted. Remember there could be many other possible causes and not just cancer xxx❤️

houseboat123

Hayley96 I feel your worry as it seems you and I are near enough at the same stage and level of worry. I’m 37 went to theGP with what I thought were piles as there is always blood and mucus, however no pain no itchiness. Been going on a while with the blood getting heavier no usual symptoms of crohns or colitis. Bloods clear calprotectin 237. Because of the raised calprotectin and family history of IBD I was referred urgently to gastro. The consultant had a quick look with a camera and referred me for a colonoscopy which is next Wed 13th again as a 2 week wait. Apart from being totally knackered I have no other symptoms I’m terrified of the colonoscopy I’m worried they aren’t telling me something, I’ve googled till I’ve nearly driven myself insane. My husband keeps telling me it’s probably still piles but I keep thinking if it was they would have been felt or seen by now

Gypsy

Dear @houseboat123. Just sending you some hugs for all your understandable anxiety. They can't not be telling you something because until you have the colonoscopy, they actually don't know so please put that out of your mind. We all understand how totally worrying this is and everyone on here has had colonoscopies done so you can express all your fears and we all will and do understand. Please don't Google any more, it is only feeding your fears and most of the info is out of date. You rarely come across positive news on there and for most, it just scares them rigid as it has done with you. If it comes to the worst (and I pray it's not for either you or@hayley96), then the thing to hang onto is that bowel cancer is both treatable and curable if caught early. There are also people living long term with bowel cancer.
Thinking of you and although it's very hard, do nice distracting things meantime. As for the colonoscopy- you will be fine. You get sedated for it.
More hugs coming your way!
Love Gypsyxx

hayley96

Hey everyone, thank you all so much for the replies! Seen my specialist this morning and he seemed pretty concerned about my last stool test and has booked me an urgent referral for a flexi scope and another ultrasound and said everything is going to start moving very quickly now to see what's actually causing my symptoms, I'm so glad I'm finally going to get some answers now but so worried at the same time, I asked him if it could be crohns and he just looked at me with this look in his eyes😩

Gypsy

@hayley96 , well, it will be good to know and to find out. Of course you are worried but you know what, we'll all be here for you whatever the outcome and the above still applies. If it is bowel cancer then there will be a treatment plan and it is curable in many cases and many on here living with it long term even when not told we've been cured. Try not to worry yourself sick meantime- easier said than done but it's not worth it. Will you start your own thread to let us know the outcome of things please. Love and hugs, Gyspyxx

Gypsy

Sorry this is your thread, @hayley96, I thought it was houseboat's for a moment. Duh!:x:

hayley96

@Gypsy thank you! Definitely very hard not to worry haha, got a call this morning and will be going next Wednesday for the camera, really dreading the prep😩😂:x:

MrsMoors

It's not that be lovely, it will clear you out but it's not as horrific as expected lol xx good luck and all the best :x::x::x:

Freckles50

Hi @hayley96 just wondering how you got on yesterday and hoping it all went smoothly? :x::x:

Freckles50

Hi @hayley96 ..... sorry I’ve got the dates muddled its next Wednesday not yesterday 🙃 xx. Best of luck with it. As others have said it’s not too bad at all and the prep really clears you out, so that actually feels quite good. :x::x:

hayley96

@Freckles50 haha I wish it was yesterday! I can't stop thinking about taking the moviprep I'm so scared I'll end up being sick! But probably just getting myself worked up over nothing, thank you☺:x::x:

hayley96

So had my flexiscope today and they said it all looks fine, they took 6 biopsies and said I should get the results in a few weeks, I'm so upset as I still haven't got any answers and it was so painful and just felt like I did it for nothing now😔, I just want to know what's causing these symptoms! I honestly don't want to have to do that again as it was so awful, just hope I get some answers soon, thank you everyone

Bear G

Hi @hayley96
I know it can feel that way but it’s incredibly good news. If your Bowel looks normal (no polyps etc) then it’s unlikely to be cancer that’s causing this problem. That’ll be confirmed when the biopsy results come in.
It’s positive in that it eliminates possibly the worst of the possible causes and allows your medical team to focus on other investigations.
Fingers crossed for the results and that you get a clear answer to what’s going on soon.
Big hugs
Bear
:x::x:

Gypsy

Yes I agree @hayley96. I think that if they suspected cancer you would not be kept waiting several weeks for the biopsy results but it would be fast tracked. That is just my opinion though but I would say it is hopeful.:x::x::x::x:

HappyAtom

@hayley96 as cruel as it sounds I was told right there and then I had bowel cancer. When they found it, they didn't need biopsies to confirm - they just knew. So, even though this doesn't give you the answer to your symptoms, it might have ruled out one possible cause. Have you been tested for celiac disease?

Marnypots

I agree I had a colonoscopy and was told there and then even tho they did biopsies They new I had my colonoscopy and straight away they said cancer so although we’re not the professionals we have perhaps Learnt how things work so be very hopeful and if the tiniest chance it’s anything you will have great support from the nurses and dr stay strong

Gypsy

Yes, I was the same. Asked and was told on the day that it was cancer and booked on that day for the CT scan. I really hope that whatever it is @hayley96 that they come up with good treatment and management for it so that you can get on with enjoying your young life. Lots of love and hopefulness to you, Gypsyxxx

hayley96

Thank you everyone, I am very glad it came back clear especially with how young I am! Guess all i can do now is push for some more answers and hopefully one day I'll find out what's causing all these symptoms, I'm going to ask if they could book me in to have a look at my small bowels as there's definitely something going on and just hope they book me in for some tests!:x::x:

Freckles50

So pleased to read your scope was clear @hayley96 , I know it must be frustrating not having any clear answers but as you say, you could ask for a test on your small Bowel. Good luck :x::x: