1st line chemo done 😐 now onto Capox with Avastin NHS top up. At a cost.
Been a while since I checked back in properly. But here I am (still 👍.. somewhat) and I'm wanting to know if anyone does NHS top up chemo?
My latest scan has shown (as long expected) that my first line of fol-fori+cetuximab has fully run its course.
Back in Dec 18 I made it clear to my team that if there was a drug that could help (NHS or not) I want to be on it, as I'm aware of how strangled the NHS is financially.
Was told that drug would be Avastin, tho it isn't currently recommended by the NHS 😬 I was always under the impression cetuximab was my blocker.
After getting my latest results (multiple mets, biggest at 44mm) they ring and advise me to go sort Avastin on private Ward. The sainsbury wing. I was told 1000-1500 numerous times. I pay 1500 and am kinda excited to get going given the sad drug addled twat I've become 🙃
I was sent up there blind with no info.
Then I get a call saying it's actually £2300 and I HAVE to move upstairs to the private Ward to do the
avastin. This means going through the tunnel at Hammersmith which proved to be quite tricky as the cold caught my throat and seized it up instantly.
I got this phonecall whilst on my normal chemo ward getting myself set up for restarting chemo AGAIN. I'm told it's 300quid for the chair and 400 to my oncologist!! My oncologist is charging me!! I didn't even know this was possible. So I was kinda pias you can imagine but also desperate to start.
I'm a broke NHS patient with no insurance.
It feels incredibly unfair to me as I've already come across a few others, doing the same treatment without the extra cost 😐
So, anyone else?