General Discussion

debby eady

Pip assesement

We have the dreaded home pip assessment tomorrow 11/03/19..
My partner was awarded full pip back in 2016, for 3 years, which ends in November this year. Had form in December returned it and now has another home assesement..
my partner had stage 3 colorectal bowel cancer and had everything removed in 2017,(at the age of 43) leaving him with a restricted walking gate , a permenant ileyostony and so much scar tissue that he has constant tummy pain and his stoma gets restricted by it ..he has been hospitalised 4 times in the past 6 months so that he can get I.v. pain relieve, is on high dose pain relieve topped up with oramorph permenantly they ask can you walk the length of 5 buses, he can’t walk 5 yards without pain !!
Hoping we have someone who knows how debelitsting cancer the treatments / operations is / can be .. fingers crossed :x::x:

Lizalou

Just a quick 'hello ' @debby eady and welcome

Your partner has been so, so unlucky! A stage 3 diagnosis (like mine) should be manageable so that sounds very tough. I really hope you get through the assessment without any issues. Remember, don't be brave and uncomplaining.....stress the worst case situations. :x:

Bear G

Hi @debby eady
I’m sorry to hear how much cancer has affected your partner, it sounds tough for both of you.
Please try not to worry about the assessment tomorrow, just be honest with them, from your description above there should be no question on it.
Big hugs
Bear
:x::x:

debby eady

Thank you.. :x::x:

terri m

Good luck with this.. I was stage 3 & on deaths door, having my chemotheraphy. & the assessor was a waste of space I never got a penny . fingers crossed fir you both😘 :x:

debby eady

So sorry to hear this @terri m , hoping you are in remission?? Chemotherapy is a horrid thing to have to undergo, without the added pressure and worry of an assesement..did you not appeal ?
my partners last assesement was whilst he was under going his radiotherapy/chemotherapy ( before his operation), he was unable to sit let alone walk as he had radiotherapy burns to his bottom, as well as being under the effects of the chemotherapy tablets.. thankfully we had a great assessor who could see the pain/discomfort he was in, and was gone within 30minutes.. her words were, I hate coming to people who are in such discomfort /pain,ill health but we have to see for ourselves..
my partner has for the past 3 days had the terrible tummy cramps/pain, has only been out of bed for a few hours since Friday, pain relief is only just taking the edge off the pain, if it wasn’t for this appointment, I’m sure he would be going to hospital for I.v. Painkillers for 48hours.. fingers crossed all goes ok again..

terri m

Hi @debby eady . yes I am in remisssion, & waiting for a scan.. I had my surgery in December 2017.. Sorry to hear your partner has endured alot of discomfort from his illness.. I have had some bowel issues, & a twinge here & there, but it has been durable.. ( 🤞). Hope the assessment in you favour, but please get you partner to see his Gp or the colerectal team, if his pain continues..:x::x:

debby eady

He is waiting on baramile results, had a ct with contrast,3 weeks ago when last hospitalised , no cancer !👍Phew .. it is suspected that it is another hernia, which is putting pressure on scare tissue, which is grabbing onto bowel (tube) and stopping stoma from either working or very slowly working.. fingers crossed baramile will show what is happening.. :x::x:

debby eady

He has made an appointment for Tuesday with gp :x:

terri m

I wish him a positive outcome with everything, you make sure you look after you too.. Lots of love & luck to you both xxx💗

Polly 1

Hi @debby eady hope all goes OK today. We are the same although after his face to face in 2016 hubby only got basic daily living. Our assessment is this coming Friday.
We returned our review forms last December like you. I knew it was only for 3 years but tbh I wasn't really expecting another face to face assessment. He is stage 4 on permanent palliative/maintenance chemo with on going peripheral neuropathy from the Folfox he had back in 2013.
Last time was so stressful and the assessor was here for over an hour and a half.
I hope your partner can get his pain sorted asap :x::x:

KatieR

Hello @debby eady These Pip assessments are a disgrace There is a list on the govt website of the questions and you can do your own ( for interest only ) I scored John at 44 ....the actual assessor scored him 12 ! .....its all a farce to save the government money
Regarding the actual interview make sure he is either in bed or laid on the sofa in his pyjamas and that all the medical equipment you have is there to see
for example a walking frame , Drugs ,Stoma equipment Wee bottle ,drinks tissues etc etc You have to set up for his worst possible day ..
Think about each question carefully .....
If it is a ‘can you’ question like can you walk 10 yards ....always say’ No ‘
Do not explain do not enter into a conversation .If you reply Yes but it would be painful or exhausting...then you lose the points
If the question is can you cook or plan your own meals say’ No ‘ It would be too dangerous
It is so easy to say ‘Yes ..but I would be in a lot of pain ‘ saying yes loses the points !
We explained that he found sitting too painful then the assessor asked if he could drive a car ...like you could drive laying on your side ? ?
These face to face meetings are cruel and unnecessary but as long as you answer truthfully remembering your worst possible day and you will be ok
Cath :x::x:

debby eady

Hi @Polly 1 @KatieR , well assessor was here for just over an hour.. my partner couldn’t get dressed if he wanted to, due to pain..
thankfully we had an assessor who knew what we were on about, she worked as a sister on the ward he is frequently admitted to before working for capita, knew all about his op treatments and the debilitating time he can and does have due to working with patients like him..
Unfortunately for my partner he is in so much pain, but fortunately for the assessment..
today was his worse day scenario, so let’s keep our fingers crossed for a good outcome to his claim..
Will be within 4to8 weeks, she is sending assesement off tonight ..
thank you all will let you know the outcome
:x::x:

bettebette

Fingers crossed 🤞 for a good outcome @debby eady

KatieR

Hello @debby eady Thank goodness that is all done with and you can both relax ..It’s just wrong that our Gp or Hospital Specialist opinions are not enough and we have to jump through so many hoops to get what we are entitled to !
Cath :x::x:

debby eady

It is a relief .. thank you :x::x:

Polly 1

Glad all sounds like it went OK @debby eady but sorry to hear your partner was still struggling during the assessment. I hope your GP can sort something out for him tomorrow :x:

Polly 1

I hope you have got your PIP assessment results by now @debby eady ? We got C's last week and got the full award this time,