So fed up with bowel team
Just wanted to have a bit of a rant about the ridiculously sub-standard service I get from my bowel team ☹️
Just done six months chemo and found it a really positive experience and was always treated amazingly. Now I'm back with the bowel team and waiting for surgery and I am so fed up and frustrated of being lied to. I have been told by three different nurses that they are my key nurse. Two of them had said they would phone me after MDT and neither did. MRI was requested by consultant two weeks ago and has still not been booked. The CT scan that picked up my recurrence was not looked at for five weeks back in August, at which point I got a phone call telling me the news.
I'm so frustrated about not being able to do anything. This op is supposed to take place 4-6 weeks after end of chemo and we're already at 2 weeks. After that, I have a liver op and I'm panicking that the length of time between that and the end of chemo will allow the liver met to start growing or spreading.
I wish so much I could afford to pay privately for treatment as it feels like the staff shortages/underfunding in the NHS are leading to levels of care which are actually dangerous ie. cancer could regrow before surgery.
I'm so fed up with it and would appreciate any advice or calming words