General discussion

jj

Awesome news to share with everyone and anyone with a sunken stoma?

All of you here, and especially those of you who have warmly welcomed me to the forum, given me moral support and courage, let me tell you a BIG THANK YOU. ( @Bear G, @bettebette, @Baxter2 , @mem, @ Sasa, @island girl, @greyhound gal, and all the others)

Got a call from bowel cancer specialist nurse this afternoon. The histology results after removing the tumour, 34 modes, blood vessels in and around the tumour, showed NO CANCER CELLS in the margins, in any of the nodes, in the blood vessels and the scrappings of the bladder wall to which part of the tumour was attached. And so my husband DOES NOT NEED ANY FURTHER treatment. Just regular check ups and monitoring. What a relief, it’s like one of my friends said, “the tumour has been downstaged. Normally it is the other way around after the resection is examined!” In my excitement and relief I forgot to ask her what stage the cancer was? Will call up tomorrow to find out.

Everyone, miracles do happen and you have to will it to happen. I will continue to stay in touch with all my of you, as I would also like to know how each of you are doing too.

He is having some problems with his stoma though. His stoma does not stick out, it’s kind of inside, if you know what I mean. Today it was red and raw around it. Luckily our stoma nurse was visiting today and she changed something - applied two rings stuck together on the skin and then used a two piece set. She is going to call tomorrow to check how it feels and has asked us to come and see her at a clinic on Thursday afternoon.

Anybody else with a stoma that’s sunken into the abdomen? And how do you manage it?

Reminder to all, it’s a very long weekend coming, so get all you need before Thursday, as our stoma nurse reminded me.

Regards and best wishes
Jane

Jomo9

@jj my stoma is fairly sunken. It occasionally comes out to play but not often! Most stomas will pop out after a few weeks post operation. Stacey Stoma has had a few leakages which makes the skin sore. I use talc and paste to patch up, then place the one-piece bag directly onto my skin as the rings make it too high. I also take Lansoprazole to reduce the output burning the skin. It’s probably a case of trial and error to get everything working well! :x::x:

bettebette

That is good news @jj! I hope your husband continues to make a good steady recovery. With very best wishes :x::x:

Bear G

That’s fab news @jj, Thank you for sharing this, you must both be so relieved!
:x::x:

Lirio345

Good morning @jj, - that is brilliant news, you must both feel so relieved. On the subject of the sunken stoma, it does take weeks or even a few months for the stoma to assume its final shape and degree of ’sunkeness’. I have in the past used an elastic belt that fits onto some types of stoma bag, pulling it tight to the abdomen. I am sure the stoma nurse will work hard to support your husband. Take very good care, Kim :x:

Gypsy

Brilliant news @jj! So happy to read this. Love Gypsyxx

Lizalou

Hi @jj

Really great that the tumour has been down graded! It's very strange that some tiny little tumours can rampage round the body, while huge ones that cause obstructions and misery can be removed totally!

Hope the stoma nurse can work her magic.

Best wishes to you both :x::x:

island girl

@jj, blooming fabulous news😄 so happy for you both, really made me smile this morning, thank you for sharing it really lifts the spirts. Best wishes to you both & lots love & hugs 🤗. :x::x::x:

Baxter2

Amazing news! I'm so delighted for you both!

Lots of love

Karen 💚💛❤️💙💜

KarenE

This is brilliant news @jj so pleased for you both. :x::x:

Salgal

Always lovely to read news like this 😄 really happy for you both :x::x:

jandals

Oh my goodness so so so pleased for you!!! Lovely to hear your news this morning :x: :x: :x:

jamtart

@Lizalou that's all most word for word how hubby's surgeon described small tumours that seem to spread and large tumours that stay localised.

jj
Quote from @Jomo9:
@jj my stoma is fairly sunken. It occasionally comes out to play but not often! Most stomas will pop out after a few weeks post operation. Stacey Stoma has had a few leakages which makes the skin sore. I use talc and paste to patch up, then place the one-piece bag directly onto my skin as the rings make it too high. I also take Lansoprazole to reduce the output burning the skin. It’s probably a case of trial and error to get everything working well!

Thanks for letting me know that Stacey Stoma is sunken.

I have helped him clean it up and have left it open with just a wipe over it for now. It is so red and other parts around it seems to be popping out but still within the the sunken area. I have taken a photo of it to show the stoma nurse. Hope it settles soon.
Thanks Jomo9
Jane

jj

@jamtart, @jandals, @Salgal, @KarenE, @Baxter2, @island girl, @Lizalou, @Lirio345, @Bear G, @bettebette, @Gypsy, @Jomo9

Thank you everyone. Yes it is really fabulous news and I hope it encourages and boosts everyone who has to go through this. The stage originally mentioned was T4N2 before the op but now it’s T3N0R0. What a miracle.

Just hoping his stoma area will settle down, so he will be in less pain. All 20 of his staples came out and the wounds, including the hernia, are dry and healed. So no more district nurses to visit.

Thank you all being here. It is so helpful to be able to read about how everyone is coping and what can be done to make things easier. You all are a great bunch. Thank you so much. 💕🥰

Jane

matilda

Such a good news!!! @jj 🙏💛☀️

LWJ81

Great news! @jj :x::x::x::x:

spannerkate

Oh my goodness this is such great news, so pleased for you @jj :x::x:

greyhound gal

That is great news @jj! Onwards and upwards!
Wendy :x::x:

cyclingjohnny

fantastic news and all the best going forward, cheers john. xxxx.

Clancy

Fabulous news @jj, such a big weight of all your shoulders. Sending love and best wishes.:x::x: