When bowel cancer returns

charleyb

The mini beast has been found

So our Onc called this morn, and it is a recurrence, the pet has highlighted a dot on the liver. No more news than that at the moment, urgent liver MRI either tomo or next week, referral to liver specialist sent, so lets see what they say. Fingers crossed its in a position that either RFA or a resection is possible.
Totally gutted, but also a strange sense of relief that it is found and its small and by itself..............we can do this!!!
Love to all
:x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x::x:

abergirl

I have been wondering and hoping all day, and thank goodness no other nasties found...I am so relieved for you. I know Charlie will do whatever it takes, and you will be with him every step.
We can't believe we are here on our little trip, it's so amazing to walk on a beach and smell that salty air. I think it's called living in the moment!!
Sending love and hugs to you for the next steps. 💕💕:x::x::x:

charleyb

Thankyou both, we feel both relief and sadness that we have to do this again. But we will do this, and we will come out the other side ❤️❤️
Enjoy every second @abergirl it sounds wonderful!! 🏖 :x::x::x::x:

Lirio345

Good morning @charleyb, I am so ‘pleased’ to hear that it is one relatively small resectable met (the whole language of cancer is weird isn’t it!). Please stay in touch and let us know how Wednesday goes, take very good care, Kim :x::x:

sweetcheeks

Sounds positive ( if that’s the right word) you both have got this , and it’s absolutely horrible you have to deal with this again, but thank heavens it has been found so quickly, lots and lots of love to you both @charleyb :x::x::x::x:

bettebette

Hello @charleyb it’s a strange one isn’t it, I am glad to hear that the solution and treatment seem fairly ‘straightforward’, but fgs, what strange circumstances we are in when we relived to hear that the situation isn’t as awful as it could be 😳😏
very, very best wishes to Charlie and you. :x::x::x:

Gypsy

Dear @charleyb , I am so glad it is resectable. Poor Charley, what a long haul it all is. But first things first- get it out and then see. Loads of love, Cathxx

charleyb

Thankyou so much you lovely lovely lot!!! Big hugs to you all :x::x::x:

@Gypsy did you have chemo after your resections? and if so what did you have? :x::x::x:

Bridget55

Hi @charleyb good luck with the planned procedure. You are a real rock to hubby. Take good care both. What a roller coaster eh.? :x::x:

charleyb
Quote from @Bridget55:
Hi @charleyb good luck with the planned procedure. You are a real rock to hubby. Take good care both. What a roller coaster eh.?

It’s like riding the Big Dipper!!
Hope you are doing ok :x::x::x:

KarenE

Hi @charleyb, good luck with your appointment tomorrow. Let’s hope they can get Charlie in and get it out ASAP. :x::x:

Gypsy

@charleyb, I had oxaliplatin and cap tablets- the standard chemo as I had not had any before. :x::x:

mem

You can SO both do it @charleyb. Recurrence is never a word any of us wants to hear but sounds like they have found it nice and early and you've got a fab team behind you too! All the best for Wednesday. Love to you both :x::x:

Sarah Morgan

@charleyb, Ian had a liver resection for a solitary met last May & a lung resection in August. He wasn’t offered mop up chemo at the time but his first scan in Nov showed recurrence in the liver & spread to the omentum. As horrible as it is going through chemo, I would go for it. Ian is now in second line chemo with Folfiri. Sending good wishes to you all :x::x:

charleyb
Quote from @Sarah Morgan:
@charleyb, Ian had a liver resection for a solitary met last May & a lung resection in August. He wasn’t offered mop up chemo at the time but his first scan in Nov showed recurrence in the liver & spread to the omentum. As horrible as it is going through chemo, I would go for it. Ian is now in second line chemo with Folfiri. Sending good wishes to you all

Thankyou @Sarah Morgan yes i am leaning to chemo after, just not sure about 12 cycles as seems a lot of folfox (hes had 12 already) but its not our decision thankfully, the MDT in London will decide. Our local hospital has gone back over scans and it looks like this met was there last year, so has been there for a long time, and not really done a lot, and grown only minimally, so hoping that this is a good thing. Hoping Ian is doing well on chemo, take care :x::x::x:

Sarah Morgan

@charleyb, Ian had 12 cycles Folfox as first line but now on Folfiri. He tolerates it better & has been able to keep working so far for about 5 days out of the 2 week cycle. He has a scan tomorrow so the dreaded scanxiety is kicking in 😏
Hopefully the slow growth is a good indicator & resection will be all that is needed for youxx

DianeS

Best of luck @charleyb, hate the word recurrence as I know how it makes you feel. I’m almost three years further on after mine, keeping everything crossed for hubby. Much love D :x::x:

charleyb
Quote from @DianeS:
Best of luck @charleyb, hate the word recurrence as I know how it makes you feel. I’m almost three years further on after mine, keeping everything crossed for hubby. Much love D

Thanks @DianeS did you have chemo after yours? and was yours resected or ablated? :x::x:

charleyb
Quote from @Sarah Morgan:
@charleyb, Ian had 12 cycles Folfox as first line but now on Folfiri. He tolerates it better & has been able to keep working so far for about 5 days out of the 2 week cycle. He has a scan tomorrow so the dreaded scanxiety is kicking in 😏
Hopefully the slow growth is a good indicator & resection will be all that is needed for youxx

Tons of luck to you and Ian, i hate scan time and so glad he tolerates folfiri better, i did mention this chemo to our local Onc but she dismissed it, i just worry about how well Charlie would tolerate another 12 cycles of folfox, but i suppose we would have to see if it comes to it :x::x:

DianeS

I had RFA and it was a doddle so if it’s do-able it’s a brilliant option. Just an overnight stay and hardly any pain afterwards. I’ve had no treatment since. My oncologist theory was ‘why treat what is no longer there’. I’m still being monitored because I’m high risk of recurrence, but staying hopeful. Love D :x::x::x::x:

charleyb
Quote from @DianeS:
I had RFA and it was a doddle so if it’s do-able it’s a brilliant option. Just an overnight stay and hardly any pain afterwards. I’ve had no treatment since. My oncologist theory was ‘why treat what is no longer there’. I’m still being monitored because I’m high risk of recurrence, but staying hopeful. Love D

Thanks for this @DianeS sorry another question what size was your met for the RFA?

This is what we wonder too, supposedly this met is now being seen on scans since last August (but teeny weeny) well in over 6 months its not even doubled in size and nothing else has popped up, i too wonder if more chemo would be over kill, but would in fact damage his quality of life esp 12 more cycles of folfox. We have been told that MRIs over the liver will now be part of his screening, and as i know you have pets i have asked for yearly pet scans too, Charlie is definitely classed as high risk for recurrence :x::x::x: