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NualaC

Another Newbie

Hello everyone,

Never joined a forum before so forgive my ignorance. I am post op by one week, beat the odds by not having a stoma so miracles do happen.
Was struggling extreme nausea but this has settled, am waiting histology so fingers crossed.

Lovely to read such positive thoughts.

Thanks
Nuala

sarahz

@NualaC welcome my love. I was lucky not to have a stoma too. Keep in touch with any worries you have people on here are great and its very helpful. Take it easy, take the offers of help, listen to the advice :x::x::x::x:

mops

Hi @NualaC I didn't need a stoma either! Glad to hear the post op problems are setting down and I think the support on here is amazing :x::x:

lisa7

Welcome @NualaC if you find anti sickness not strong enough. Doctors can give you other types of anti sickness that will work. My dad had a lot of sickness post op. Took us awhile to get the right anti sickness. Nutritional drinks will help build you up after op. Sending you best wishes and hugs :x::x:

NualaC

It's so great to have support from people in the know.
I have to say my team at the hospital are off the scale, can't believe that my consultant has actually called me at home to check up on me. Coupled with the support from all of you i feel well looked after.

Nuala :x:

Poppies

Hi @NualaC, how wonderful of your consultant, such kindnesses mean so much I think.

How are you doing?

Px

jj

@NualaC warm welcome to this great forum.
How caring is your consultant and your colorectal team. So glad that you have them. Three cheers to the team taking care of Nuala.
Nuala, maybe you should mention which hospital is taking care of you, so that others who want second opinions or those who live in the neighbouring areas could ask to be transferred there if they are not getting good care at their centre.
We are here to virtually hold your hand and walk beside you whenever you want. So feel free to say whatever you want (no abusing us though 😛) and whenever you want. We are a social community with focus and determination to beat BC.
Regards
Jane

NualaC

For a hospital that has had bad press it cannot be faulted in my view, Whipps Cross in London.

Day by day a little better Poppies, what about you?

Nuala :x:

Poppies

Hi @NualaC, often we just hear the bad stuff, so it's great to hear the good.

I feel stronger each day too, not easy not doing much is it!

Px

NualaC
Quote from @Poppies:
Hi @NualaC, often we just hear the bad stuff, so it's great to hear the good.

I feel stronger each day too, not easy not doing much is it!

Px

I don't know, I could get used to having a slave husband around at my beck and call😄
How are you getting on with the bag. :x:

Carrie

Just a welcome from me @NualaC. Hopefully you are recovering well post op. I have op to come further down the line, so will be keeping an eye on how all you lovely post op'ers are recovering. I'm glad you joined the forum; I'm sure you won't regret it. It's an amazing support. C.:x:

Lirio345

Hi @Nuala, I also experienced top surgery and care from Whipps. I am now under Bart’s for chemo, Kim :x::x:

NualaC

Hi, @Carrie,
I can only hope you have a team like mine, if so you will be fine.
Keep positive, I take it a day at a time and notice small improvements every day. Being a patient,patient is the key.

Do you know when your op is, I will keep everything crossed for you.

Nuala :x:

NualaC
Quote from @Lirio345:
Hi @Nuala, I also experienced top surgery and care from Whipps. I am now under Bart’s for chemo, Kim

Great, which consultant did you have? Also if you don't mind me asking, what stage were you at when they advised chemo.I am obviously in that horrible limbo or waiting to hear.

Nuala :x:

Lirio345

Hi @NualaC, I was Stage 4 (liver mets) on diagnosis. I had two lots of Bowel surgery carried out by Mr Pasquale Giordano, and liver surgery in The Royal London. If you click on my username you can read my profile in detail, - if you want to!

You are in a difficult place waiting for biopsy results, - all of us on here know about the waiting game.

Chemo is generally offered after surgery if you are stage 3 or 4, but not until at least six weeks post surgery.

Have a look at the Charity Publication called ‘Your Pathway’ if you haven’t done already. Everything is explained in there.

bowelcancerorguk.s3.amazonaws.com/...ons/YourPathway_BowelCancerUK.pdf

Take very good care, Kim :x::x:

NualaC
Quote from @Lirio345:
Hi @NualaC, I was Stage 4 (liver mets) on diagnosis. I had two lots of Bowel surgery carried out by Mr Pasquale Giordano, and liver surgery in The Royal London. If you click on my username you can read my profile in detail, - if you want to!

You are in a difficult place waiting for biopsy results, - all of us on here know about the waiting game.

Chemo is generally offered after surgery if you are stage 3 or 4, but not until at least six weeks post surgery.

Have a look at the Charity Publication called ‘Your Pathway’ if you haven’t done already. Everything is explained in there.

bowelcancerorguk.s3.amazonaws.com/...ons/YourPathway_BowelCancerUK.pdf

Take very good care, Kim

Wow Kim, you are on such a journey, you come across as a very strong positive person, keep me posted.

By the way, what's with all the Italians at Whipps, I had Me Stephano Andreani who is a force of nature😆

Nuala :x:

Lirio345

Thank you for your kind words @NualaC, Kim :x::x:

Poppies
Quote from @NualaC:
I don't know, I could get used to having a slave husband around at my beck and call😄
How are you getting on with the bag.

You could play hubby up a bit and ask him to get you bell, she says mischievously :D

Storming Norman doing okay, but having a few issues with the bag, which I think will get sorted, probably down to contour of the skin. Just wish I could get rid of the water infection, I can't understand why this 2nd lot of antibiotics I have nearly finished isn't moving it.

Thank you for asking @NualaC

Carrie
Quote from @NualaC:
Hi, @Carrie,
I can only hope you have a team like mine, if so you will be fine.
Keep positive, I take it a day at a time and notice small improvements every day. Being a patient,patient is the key.

Do you know when your op is, I will keep everything crossed for you.

Nuala

I reckon it should be around December time, so still a bit to go yet. I start my chemo/radiation cocktail next week then surgery 12wks post treatment. Wishing you well. C.:x:

NualaC
Quote from @Lirio345:
Thank you for your kind words @NualaC, Kim

Did as you suggested and read your profile, well Kim, if anyone needs a lesson in how to handle this awful situation, all they have to do is read your profile.

What an amazingly strong person you just be to still be so upbeat after all you have been through, a true inspiration.
Nuala :x:

Lirio345

Thank you again for your very kind words @NualaC, I am truly humbled by them. One of the things that really helped me was counselling, organised by one of the Whipps Cross Colorectal Nurse specialists. I still have bad days but I deal with the dark thoughts more effectively now.

I truly believe that embracing the treatment helps whether it is surgery, chemo or radiotherapy and this helps me stay in control. Bizarre as this sounds I quite enjoy my chemo days!

I get a great deal from this online community group, and have also gained such a lot from Penny Brohn courses, headquarters in Bristol. Being with other people who get it is a luxury and I have made some good friends there.

You take very good care and please stay in touch. If by any chance you have chemo in the future we could perhaps grab a coffee together ☕️, Kim :x::x: