General discussion

belinda66

PIP - null points

Yes, I scored 0 points at all in my PIP assessment. It's a bit like Britain in the Eurovision Song Contest. The fact that I went on my own and made good eye contact went against me. They said I don't take any medication for mental health condition which I do and provided evidence of.

Bit shattered now but going to claim mandatory reconsideration, write to MP and possibly local paper.

Floss07

My sons partner has long term depression, arthritis, hip dysplasia and joint conditons and been on PIP for year as can't work. They moved to Wales, was reassessed and her PIP which she relied on suddenly stopped. 16 weeks till she hears anything about her appeal and we have had to help them out on our pensions. It is so wrong. Feel for you.

Stillme

@belinda66 I am tagging @1234annie in this as I believe she has just done a thread on the same thing and although she really had to kick arse, she has had brilliant results. It is just appalling that we have to jump through hoops to get what is rightfully ours at a time in our life when we desperately need help and money should not be a worry :x::x:

belinda66
Quote from @Floss07:
My sons partner has long term depression, arthritis, hip dysplasia and joint conditons and been on PIP for year as can't work. They moved to Wales, was reassessed and her PIP which she relied on suddenly stopped. 16 weeks till she hears anything about her appeal and we have had to help them out on our pensions. It is so wrong. Feel for you.

Sorry to hear that. Hope appeal successful.

Bear G

Hi @belinda66
I’m sorry to hear this but can’t give any direct advice as I have no experience of PIP. In line with @Stillme comment, you could use the 🔎 at the top of the page to search for other discussions.
Also, I can’t remember if you’ve already done so, you could call Macmillan as they’ve got a specialist team trained in finance matters.
Big hugs
Bear
:x::x:

belinda66
Quote from @Bear G:
Hi @belinda66
I’m sorry to hear this but can’t give any direct advice as I have no experience of PIP. In line with @Stillme comment, you could use the 🔎 at the top of the page to search for other discussions.
Also, I can’t remember if you’ve already done so, you could call Macmillan as they’ve got a specialist team trained in finance matters.
Big hugs
Bear

@Bear G - thank you. For the first time, I felt life isn't worth living today. It is so humiliating, as if I'm a liar and scrounger. Ironically, I had a bad night with my various issues and woke up in pain.

Lirio345

Hello @belinda66, I am really sorry to hear this and how it has made you feel so miserable. I know I have mentioned Macmillan’s earlier on in this thread, but I cannot stress enough how helpful and knowledgeable they are. It is definitely worth appealing, there is so much in the news atm about folk appealing isn’t there ...........
Take very good care, Kim :x::x:

angepange

Hi @belinda66 . I work with adults with learning disabilities, and also used to work at a local DWP for 30 years many years ago. My service users have been refused PIP , and I have put in for mandatory reconsiderations for them , picking through their decision bit by bit, and putting arguments forward, and more evidence if I can. I’ve put in about 6 overall, and only one was refused, (which I then took to appeal and won), so, whilst they obviously weren’t cancer related, it is definitely worth battling the decision, and providing more evidence. Good luck .:x::x::x:

1234annie

Are you on cancer treatment @belinda66 ? When I went for my review in Nov 18 and was still under the clinical psychologist I scored 0. I'm back on treatment so refused to go to the interview, they didn't have any staff for a home assesment so I contacted the local Mp which got things moving. They are also doing a full investigation as to why it just sat on someone's desk for 5 weeks dispite being marked urgent. I've now been awarded full PIP with higher rate with no interview but they did have copies of all my hospital letters and a telephone consultation with my colarectal nurse and the report was done straight away but not till I screamed down the phone at them and got my MP involved.
Annie :x: :x:

julesdix

I'm glad you're doing mandatory recon, I had to with mine, they had ignored facts stated on claim and backed up by consultant and mh nurse. They changed mind and awarded me. So it can pay to persevere. Go to appeal if you dont get it, but if that happens dont try it alone, get backing of citizens advice or similar to support you and help with resubmitting paperwork if needed. It's a minefield, dwp are getting slated by appeal judges for taking cases there which are clearly worthy of funding. (I'm being looked at for probable MS, a lot of people on old disability benefit have lost out changing to pip. Terrible when their disability evident and no cure. I'm unlucky with probable ms and cancer, I'm lucky to get pip I know). Hope you get all you need :x::x:

belinda66

@1234annie:

Are you on cancer treatment @belinda66 ?

No not directly but take stuff for constipation and diarrhoea due to surgery side-effects. I also have asthma inhalers, Lansoprazole, another anti-acid medication and antidepressants.

I have to consider the time and energy it takes to deal with this. There's a very good Citizens Advice adviser who knows my case but she gets booked up weeks ahead and the drop-in isn't so good.

Some of you may know that Citizens Advice has accepted funding on the condition they don't criticise the DWP. This is how this scandal is silenced though CA advisers will criticise off the record. The Samaritans accepted some government funding on the condition that they don't criticise Esther McVey!

belinda66

@Lirio345 - thank you for your kind words, and everyone else too - they are really appreciated.

Yesterday was a bad day. I found my thought processes going down the route of wondering if life is worth it. I didn't dwell actively on it but I am acutely aware of this having been seriously suicidal in my teens. I have always been grateful for surgery and chemotherapy but there is something so horribly personal about being dismissed for a few quid a month - which is money that we and our relatives paid in.

Do these people think I want to be coughing up phlegm all the time and rushing to the toilet? Ironic that this report said I wasn't on any mental health treatment because at this rate I'm gonna need it.

If I do manage to appeal, I am not going back to that assessment centre.

Lirio345

Hello @belinda66, I do feel for you and can begin to understand why it is making you feel like this. Please remember that we are here for you and I wonder if it is indeed time to seek mental health support and treatment. Nobody deserves to be left to feel so bad because as a result of being denied financial security.

I wish I had some words of wisdom, but meanwhile please stay in touch and take very good care, Kim :x::x:

Baxter2

Hi @belinda66

I'm sorry to read of the struggles you're having at the moment. As you say, the feeling of being dismissed is so very hurtful especially if you're already feeling a little fragile. I can remember the feeling of being written off treatment wise from my first Oncologist. It really does feel like your life and everything you've achieved in it is worthless and that's a horrible place to be.

I hope you can make contact with Macmillan and get some financial advice and help over all this.

I'm sorry if I should already know this, and apologise if you think I'm being intrusive, but do you have someone close to you at home who can support you emotionally and practically with all of this? If not at home, nearby? Good friends and family are pretty invaluable at times like this but that said, I would understand if you just wanted to shut yourself away as that's a common reaction when feeling so low in mood. I do remember I did this when I was feeling very low in mood, I was more inclined to shut myself off and decline any offers of company and support from friends and family. This of course, wasn't entirely helpful and I soon realised I needed all the help and support I could get! Do you still have your beloved older doggie?

I hope we, as your forum buddies, can help in some way Belinda. We're all here for you just as you've been here for all of us! Please feel free to DM me if it's easier. I'm sure things will get better and you'll soon feel brighter. I hope you can see your GP this week and have a chat about how you're feeling.

Lots of love and a big hug!

Karen 💜💙❤️💛💚

belinda66

@Baxter2:

Thank you. I don't have any family at all. I have some friends who understand the issues, some of them having been through it. I am reluctant to get involved with statutory mental health services after a brutal experience. I will have to think it all through.

One irritating thing is that everyone refers me to someone else who refers me to another organisation/person. In the end I didn't get a single letter of support from any health professional.

Baxter2

Ok @belinda66 It must be difficult having no family and I guess people like me really cannot comprehend how that may feel for you. I'm glad you have good friends who understand though.

I can understand your reluctance to get involved with MH services if your past experience wasn't good. I suppose it's possible you may feel differently this time around? It may well be that your GP surgery has someone employed who is able to offer you something? Do you have a Maggies Centre near you? I found the 1:1 counselling and groupwork there invaluable so you may want to consider that if it's possible?

Please stay in touch and let us know how things go. Always here for you,

Karen 💛💚💜💙❤️

GD62

Hello @belinda66

Sorry to read about your PIP, but as before try Macmillan's as they were great with my NHS pension problem, and there is a template free online if you want to do a mandatory appeal letter too. It is free, and a letter to your MP sounds a good idea too, as it certainly sorted out my PIP appeal...

www.advicenow.org.uk/pip-tool

Good luck, hugs :x::x::x: