Year Two Scan - Hoping for Reassurance!
Hi everyone, I'm new to the forum and hoping for some help / reassurance! At the age of 37, I was diagnosed with stage 4 rectal cancer in August 2016, I had two tumours in my rectum and four spots on my liver. After lots of chemo, radio and two major operations, I'm clear of cancer! Well, I was as of last November...that was my year one scan and this week, I have my year two scan. And I am petrified.
Just to give a background of my treatment, I firstly had six rounds of Oxiliplatin, 5FU and Cetuximab from Aug 16 - Nov 16. A scan in Dec 16 showed a marked reduction and I had liver surgery in Jan 17; no liver was removed, they literally cherry picked and ablated the spots, which turned out to be just scar tissue so no active cancer cells left.
In March - April 17 I had chemo radiotherapy and in July 2017 I had an APR (so they removed my rectum and a good margin around in including all the lymph nodes, I now have a fetching 'Barbie Bum'!) The histology after that was good, the cancer left was a teeny bit in my rectum, all of which had been removed and under the microscope there was an even teenier bit left in a low down lymph node, also removed with a good margin around it.
I had six more rounds of chemo from Sept 17 - Dec 17 followed by six rounds of 'maintenance' chemo from Jan 18- April 18. I was scanned throughout and each scan was clear, after I finished chemo in April 18 I had a scan in June 18, which was clear then another scan in Nov 18, which was clear.
So, it's been a whole year since that last scan, I had my bloods done two months ago and my CEA was 1.9, which my surgeon said is entirely normal. I think mine only ever went up to 5 or 6.
I have no symptoms, I am well, I look well, I'm not losing weight and I'm not tired.
But even though I read all this, I am so petrified about this scan and the results that I can't think straight. I have two little boys and I'm losing my patience sos quickly with them, my husband keeps telling me to look at all the good evidence but I just can't think logically. I keep thinking my CEA can't be counted as it was never that high in the first place and worry that what if I've had a reocurrence but it's so small it won't show in my blood or cause me any symptoms??
Every scan takes me straight back to 2016 when it was so awful and I just can't feel positive.
So, even though I'm new here I'm hoping someone will take pity on me and tell me it's all going to be fine!
Thanks for reading,