Stage 4 bowel cancer

Chelts

Wish I knew what was happening

So, after last Monday’s MDT meeting the ‘experts’ now don’t think I have got an abscess on my liver! My CRP went back up to 55 from 14, but they don’t know why so had a PET scan yesterday to once and for all find out what is wrong inside.
9 weeks off chemo now! 🤬 My oncologist has told me to stop taking the antibiotics as they’re not doing anything and my CRP levels can increase with cancer activity.
Not looking forward to Monday when my oncologist will give me what I can only feel will be bad news.
BTW With regard to antibiotics and chemo not mixing - that’s not the case apparently- it’s abscesses and chemo that don’t mix.

Chelts

Thanks everyone for your kind words- means a lot.
I’ll get rid of these bastard rabbits and if I don’t they’ll know they’ve been in a battle! 🥊🥊

Nats53

Sorry for your news @Chelts. Here’s hoping the Chemo gets rid of those b...... rabbits. Sending lots of love :x::x:

Bear G

Sorry to hear that @Chelts but it’s worked for you before so fingers crossed it does again.
Your docs prognosis is an educated guess, something to aim to exceed!
Big hugs
Bear
:x::x:

Floss07

Wish I could save a magic wand and change what you heard today to something better... Keep fighting and I am sending all the support to you I can :x::x:

ElaineG

I’m sorry that it wasn’t better news for you @Chelts . Keep fighting. Thinking of you. Elaine 😘

cyclingjohnny

Hi @ Chelts sorry to hear your news, just prove them wrong, wishing you all the best, cheers John.

Aislinglouisepia

Very sorry to hear of the news @Chelts Judging by my Da and also stories I keep track on here. At times you can feel like you are in the depth of despair when scans show up bad news. The prognosis cannot predict how your body responds to chemo. You responded well to chemo before...sending all those positive and peaceful vibes to help you in this current battle :x::x::x::x:

Chelts

Is anybody able to comment on why my liver tumour has become inoperable?
I didn’t really clarify with my oncologist and I don’t think I can wait to ask him next time. I think he said it was something to do with it growing again but I believe it had stopped growing when I was on cetuximab and only started growing when I came off chemo, which is the norm for me.
Or it may be something to do with the spread to my lymph nodes.

Lirio345

Good morning @Chelts, it may be due to its position as tumours too close to major blood vessels for example cannot be removed surgically. If this was the case they may be able to use ablation or similar.

Can you phone your specialist nurse for a chat as obviously you don’t want this to prey on your mind until the next oncology appointment. Take very good care, Kim :x::x:

kas52
Quote from @Chelts:
Is anybody able to comment on why my liver tumour has become inoperable?
I didn’t really clarify with my oncologist and I don’t think I can wait to ask him next time. I think he said it was something to do with it growing again but I believe it had stopped growing when I was on cetuximab and only started growing when I came off chemo, which is the norm for me.
Or it may be something to do with the spread to my lymph nodes.

Chelt,maybe your liver tumour is just next to artery,what can make it inoperable.My husband met was very close to but there was possibility to cut it out,but as far as I know didn't live completely clear margin. All what is very close or next to arteries make it very difficult to remove.Please stay positive.Hugsx

bettebette

Hello @Chelts I can’t offer any advice I am afraid, just to reiterate what Lirio has said about speaking to your specialist nurse; I always write down the points I want answered so I don’t forget while I am there/on the phone.
Best wishes to you :x::x:

Elmac

I downloaded an App onto my iPhone and iPad called AudioMemo for the princely sum of 99p and used it whenever I had an appointment or telephone conversation which I would put on speaker in order to record. My oncologist approved and in fact Sussex Gen Hospital will cut a disc if you can't record the meetings yourself. Provided you ask first there is not a problem
Elaine

Chelts

I don’t think it is a case of being close to an artery as before I had my abscess and came off chemo the plan was to operate.

Oh- and to top it all- the day before I was due to start chemo again a piece of my tooth fell out which I’m having checked out today at the dentist, as if I have to have the tooth removed it would mean stopping chemo again!!!
These rabbits are determined to get me 🤬

charleyb

So sorry to read your update, I am really hoping chemo works wonders for you. I would think it’s the lymph’s, to have surgery they would be left unattended, and I would think it maybe Is too big to ablate. But it’s worth asking and maybe a second opinion :x::x::x:

Lirio345

Oh I see @Chelts. Hopefully someone will be along with an alternative suggestion .... I’m afraid I have no experience, but I guess it is to do with the spread to lymph nodes.
So sorry to hear about your tooth, I hope it is sorted soon, Kim :x::x:

Chelts

Had the tooth checked out yesterday and fortunately the piece that has broken off is in a ‘good’ position and should not cause any pain for a while. Unfortunately the dentist also found a loose filling in the tooth behind that goes below the jawbone level and would probably need to be crowned but again, he said it should not cause any problems for now. So, let’s get them ferrets piled in !!!

bettebette

Good news about the dental treatment @Chelts (if there can ever be good news about the dentist!) Yes, get those ferrets sorted now! :x::x:

greyhound gal

Sending you hugs and positive thoughts @Chelts ,
Love Wendy :x::x:

stu

Hi ,
Just picking up your question regarding the liver surgery not occurring at this juncture . The reasoning we have always been given and I have had a brief look at the Nice guidelines. It may be more of a clinical judgement call to prevent any potential delays in returning to systemic chemo when there is more than one area requiring treatment at the same time . They get concerned over any potential post surgical complications that could push that back . But as long as you are chemo responsive and reach a stable point they can then review at a later date and the guidelines are supportive of adding in local treatments once stability is achieved .
You stated you respond well when on treatment . My mum did the same , but got regrowth off . They did then add other treatments once they got her stable again . Nipped in when the wee window of opportunity opened up .
I wish you great shrinkage and lots of options to follow .
Take care ,
Stu

Chelts
Quote from @stu:
Hi ,
Just picking up your question regarding the liver surgery not occurring at this juncture . The reasoning we have always been given and I have had a brief look at the Nice guidelines. It may be more of a clinical judgement call to prevent any potential delays in returning to systemic chemo when there is more than one area requiring treatment at the same time . They get concerned over any potential post surgical complications that could push that back . But as long as you are chemo responsive and reach a stable point they can then review at a later date and the guidelines are supportive of adding in local treatments once stability is achieved .
You stated you respond well when on treatment . My mum did the same , but got regrowth off . They did then add other treatments once they got her stable again . Nipped in when the wee window of opportunity opened up .
I wish you great shrinkage and lots of options to follow .
Take care ,
Stu

Thanks Stu. There may be hope then 🙏🙏