Positive stories about LONSURF
Hello fellow forumites it is now seven years since diagnosis.Unfortunately i think that the chemo cupboard is now almost empty and my onc put me on a three month chemo break despite there being a slight increase in my tumour. Last week there was further growth on my liver and my onc,who is a very nice man, felt that i could extend the chemo break by another 3 weeks.I guessed from this that my options were running out and i was somewhat taken aback when he told me that in three weeks time he would put me on LONSURF.This really startled me as i had read somewhere that LONSURF was an end of the road treatment and that it had some awful side effects. Iwould appreciate it if some of you have heard positive stories about LONSURF. my onc told me that he would give me a reduced dose to lessen the side effects. H owever ,i think it is really bad news and that he is afraid of spooking me.Any positive stories would be much appreciated. Also it does not help psychologically that i will be beginning LONSURF during the predicted peak of the CORONA VIRUS. Best wishes BICHON