General discussion

kitti

CEA

Hi, Ive not been on for a while as I found I was using the forum to feed my anxiety, although the support I received here at diagnosis was second to none. I had a 26 month clear scan in July and CEA was 1.6, with this months bloods my CEA has jumped to 3.6, the consultant wants to repeat bloods next month and discuss at mdt, he said my clear scan in July was read by the colorectal specialist radiographer as clear so he said that is reassuring. Anyone had similar? Ive been told not to panic but I am. :x::x::x:

kitti

Hi @louise28 it's on Tues next week, they decided they wanted it repeating mid Dec. I will of course let you know how it goes. :x::x:

louise28

Best of luck! Am hoping it has bounced back down! :x:

Jogey

Hi Kitti, I have had readings between 1 to 1.5 but got one reading a lot higher which worried me a lot. However subsequent CEA scores went back between 1 and 1.3 and subsequent scans and sigmoidoscopies have been clear. So sometimes my experience is a higher score can be a glitch.

Jogey

@kitti please see comment above

kitti

@Jogey thank you my bloods was repeated yesterday so expect to find out today what it is now, and if I need a PET scan. Many thanks the positive outcomes really do help :x::x:

Jogey

@kitti here's hoping for the best possible results today. take care Jogey

cyclingjohnny

Hi @kitti fingers crossed for your blood results today, take care cheers John :x::x:

1234annie
Quote from @kitti:
@Jogey thank you my bloods was repeated yesterday so expect to find out today what it is now, and if I need a PET scan. Many thanks the positive outcomes really do help

Good luck hun. 🤞

louise28

Fingers crossed back today and all normal again!

annie50C

Good luck @kitti hope all ok xxxx thinking of you

kitti

Hi everyone, I cannot believe it, but my results are 1.3! Thankyou so much as always for all your support you guys are the best!! Still in shock, I almost had got myself to the point that I expected bad news. :x::x::x:

annie50C

Xxxxx !!!! 🎉

cyclingjohnny

wonderful news @kitti take care cheers john. :x::x::x:

molly2me

Hi @kitti so easy to panic, thrilled for you :x::x:

Jane39

Hi @kitti
That is fabulous news. You can now relax. Take care, Jane :x::x:

louise28

Brilliant, it's kind of.reassuring to know.it has bounced around a bit but def back down to normal. It's so hard not to panic tho :x::x::x:

Jogey

So pleased for you @kitti I know so well what a CEA scare is like so really happy to hear this!

Siona

that's great @kitti now you can breathe again xx :)

bowelbehavingbadly

@kitti Just read this post so happy to hear you’ve been reassured. I was reading with trepidation until the end. ❤️

kawa909

Good news @kitti 🙂