Just reached 7 years since stage 4 diagnosis
Just a quick update that I'm still beating the odds. Today is the 7th anniversary of the colonoscopy that diagnosed my cancer. It's been a rollercoaster ride - but I would have bitten your hand off to be given 7 years at that point. Now of course I want another 7, though that is unlikely. I am now on palliative chemo, treating symptoms not expecting a cure. My GP did a FIT test to see if there was any internal bleeding causing persistent anaemia. It came back at 128. 120 triggers investigation, but as they wouldn't treat any bleed they found through a colonoscopy it's just another interesting bit of information. An iron infusion seems to have done the trick in addressing the anaemia though so I am feeling fighting fit at the moment. On fortnightly rechallenge with folfiri which is very tolerable. After the next (6th) cycle I will have a scan and we will see if it's holding things. Oncologist says there's now no data to base any treatment on, so it's just try things out and hope for the best. I'm still on the Christie's active waiting list for trials, but they thought it was better to try irinotecan again (it worked for over 2 years last time) and go for a trial later. Onwards and upwards!