Signed off from oncology .. at last!
So, here we are.
There was a time when this forum was my lifeline, I couldn't leave it alone. I logged on several times a day, seeking answers, looking for reassurance, gathering information and trying to support others going through the same thing at the time.
The advice and support I received, in so many forms, pulled me through a very dark time and I will be forever grateful for that. This is a truly supportive, informative place to be, whether you are the patient or the partner/carer of a bowel cancer patient..
I even became a moderator for a while.
I read through the posts now and recognize so much of what people are going through.
The treatment plan.
The fear of spread.
The cautiously good news, followed by the unexpected blow.
The minor victories.
The seemingly endless slog of treatment.
And the constant, underlying need for answers.
The experience doesn't change ...
But what I also notice now is ... how many of the people I 'knew' back then, aren't here anymore.
And that's not necessarily because there was a bad outcome.
It's because, for many many people, bowel cancer becomes a thing of the past. We beat it, we move on. But we don't come back to the forum because we don't want to be reminded of that period of our lives.
For those that remember me, Mr T has just been officially signed off from oncology. He (and WE) are left with scars ,of course we are.
But we beat it and have our lives back.
I don't post this to brag, but I think it's very important for everybody to know that this CAN be beaten and IS beaten every day.
It's just that, those that are fortunate enough to come through the experience with a good outcome, don't post often enough.
To give others hope.
If anybody wants details, they are on my profile. You can see my messages of despair at the time. As a carer, I was where YOU are right now.
I am also guilty of leaving the forum behind because it no longer gave me something I needed.
But Mr T's recent all clear, made me think of you all.
So, dig in.
Get on with it.
There are more success stories out there than you know about!