Update on my private consultation today
Thanks to everyone for the kind wishes and encouragement, especially Kawa909 who helped a lot with all the questions to ask. The appointment went well. The oncologist was lovely and explained everything well. I really liked him and he gave me a "glimmer of hope in the darkness". He said that while I was fit and well I should have the bypass operation on my bowel ( I am seeing the surgeon tomorrow at my own hospital) as it was best to do it as a prevention rather than waiting until I go into bowel obstruction which makes sense. The treatment he recommended was the lonsurf pills combined with the Avastin, (which sadly isn't available on the NHS of course.)I have no clue how much it will all cost but it won't be cheap of course. One good thing though, it is priced by weight and I am only about 55kgs now!!
He also said he would write to his colleagues in London and see if I can get on a phase 1 trial which sounds scary but could have good results and I would be a ideal candidate for it. I managed to ask all the questions I wanted, and he answered them all honestly and directly. My sister took some notes but he said that he will write to me with everything he discussed.
I left there feeling a lot more hopeful since I got my last CT scan results a couple of weeks ago now.
Hope you are all doing well with your treatments and beating this (expletive of your choice) disease!