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Kim Dazed but Plucky

Best way forward.

Hello, I am Kim, I am 64, and living in Devon with my Cockerpoo Tink. I wanted to ask for some early days advice. With all 4 classic symptoms of bowel cancer I have been referred for a colonoscopy asap.

My question is this:
Assuming I have a late stage bowel cancer, is there any benefit going privately? I have a pension I could partly cash in. Given the NHS is gearing up much more than it was? Plus, NHS is plugged into Trails etc. What do you think..?
I would be very pleased and grateful for any and all advice.

Thank you very much.

Jane39

Hi @Kim Dazed but Plucky
Welcome to the forum although sorry to hear of your health concerns.
It is so difficult waiting for tests/ scans and results and our minds go into overdrive.

There are many other bowel condition’s other than cancer that can cause symptoms so hold onto that for now.

The NHS has an excellent system for any potential cancer referrals called ‘2 week wait’ so in my opinion there would be no need to go via the private route for diagnosis purposes. For the last six years since cancer diagnosis I have received nothing but excellent care from the NHS.

I hope you have the colonoscopy soon and it is positive results for you.

Take care,
Jane :x:

Tiffany

@Kim Dazed but Plucky

Hi there and another welcome to the community nobody wants to join!

When I read your message my first thought was to tell you to stop and slow down. Your thoughts are running away with you right now. First thing is first - you need to wait for a diagnosis and even if it is a BC diagnosis then there is no saying you haven't caught it early enough to make a full complete recovery. Bowel Cancer in the early stages (and sometimes even at Stage 4) can be completely curable.

I echo what the others have said above though about the NHS. At this point there is no need to even look at the private route so long as you feel you are being dealt with quickly and efficiently.

So take one step at a time - wait for the results of your colonoscopy and then please come back and let us know. Whatever it is we can support you here or point you in the right direction.

Thinking of you and hope you get answers soon. Tiffany :x:

Kim Dazed but Plucky
Quote from @Jane39:
Hi @Kim Dazed but Plucky
Welcome to the forum although sorry to hear of your health concerns.
It is so difficult waiting for tests/ scans and results and our minds go into overdrive.

There are many other bowel condition’s other than cancer that can cause symptoms so hold onto that for now.

The NHS has an excellent system for any potential cancer referrals called ‘2 week wait’ so in my opinion there would be no need to go via the private route for diagnosis purposes. For the last six years since cancer diagnosis I have received nothing but excellent care from the NHS.

I hope you have the colonoscopy soon and it is positive results for you.

Take care,
Jane

Hi Jane, my sincere thanks. I confess to being in pieces. I have had anemia for over a year now and have been trying to track down the cause. So, I am fearing the worst. But you are right I have to remain open on things until I know.
Yes, I do trust the NHS, but was worried whether covid issues had acted negatively on the follow ups etc.
I am chuffed to hear of your ongoing excellent treatment and service, as it's an indication of their benefit. With tons of thanks Jane. Kim :x:

Kim Dazed but Plucky
Quote from @Tiffany:
@Kim Dazed but Plucky

Hi there and another welcome to the community nobody wants to join!

When I read your message my first thought was to tell you to stop and slow down. Your thoughts are running away with you right now. First thing is first - you need to wait for a diagnosis and even if it is a BC diagnosis then there is no saying you haven't caught it early enough to make a full complete recovery. Bowel Cancer in the early stages (and sometimes even at Stage 4) can be completely curable.

I echo what the others have said above though about the NHS. At this point there is no need to even look at the private route so long as you feel you are being dealt with quickly and efficiently.

So take one step at a time - wait for the results of your colonoscopy and then please come back and let us know. Whatever it is we can support you here or point you in the right direction.

Thinking of you and hope you get answers soon. Tiffany

Tiffany, you have me down correctly. I am a terribly doom-monger and totally fell apart when the GP said we needed to move fast. Thanks ever so much for your calming words of advice. I have taken then in. It really helps and is very much appreciated. I will be back with my update.

Kim :x:

Poppies

Hi @Kim Dazed but Plucky welcome to the forum. It's hard not to think the worst, but there can be many causes and I have everything crossed for you.
I do not think I would have had any faster or better treatment if I went private and think you will be seen quickly. Urgent throws us into panic I think, having just had another urgent colonoscopy, but it's brilliant they move so quick and I try to see it that way.
Not knowing is just the hardest and we are if you want to chat. P :x:

Kim Dazed but Plucky

Yes, Poppies the not knowing is an agony. I also feel so stupid not to have pressed to have a colonoscopy in Nov 2020 when the blood was first found. But with lockdown I held off. So foolish.
Having thought more on it the NHS looks the best path. It's encouraging having you all endorse its value. Just great in fact. Thanks to you for your kind support. Kim :x:

stevejl

Hi @Kim Dazed but Plucky unfortunately when we worry we often read things in to words our medical team says to us when they are meaning something completely different that is not unsettling.
Waiting some time for these procedures can be worse mentally as at least it gives you something to focus on as you are being seen quickly.
Are you able to take someone with you to your colonoscopy as I found having another person with me really helped afterwards although I was given a full report as they picked up on things I missed when I was overreacting to words being used by the BC screening nurse.
Your appointment letter should give details of whom can accompany you as Covid restrictions on numbers did not apply in my trust for this procedure.
As others have said your symptoms could be a sign of something else as colonoscopies only identify a small number of BC's per 100 screenings.
Take care
Sending more love & hugs
:x::x::x::x::x:

Kim Dazed but Plucky

Steve,...hey .? .. that not listening thing and over-listening ? I have medals for that! 😁.
I have a close friend ex Army, who can help me I think. All my family are in the wilds of of Liverpool. But, again very sound advice. I didn't sleep at all last night, and googled myself into a state of high anxiety!

More hugs much appreciated. Strange thing is... they help.
Kindest regards from Kim :x:

Lirio345

Hi again @Kim Dazed but Plucky, please allow me to be cheeky and ‘ban’ googling until things are clearer. We all do it and it is a brilliant resource if you are researching very narrow parameters, but mostly it just increases our anxiety (which of course unsettles the bowels even more). There is no way of speeding up this stage as time is needed for tests to be carried out and results analysed.

You will often read on here that ‘thoughts are not facts’; believe it or not if you repeat this to yourself again and again, your brain can be taught to break the vicious circle of negative thoughts and panic.

Keep busy, be nice to yourself and approach one day at a time, - easy for me to say I know, - but I have a bit of experience in this! Kim :x::x:

Kim Dazed but Plucky

Aaaah, thanks Lirio. Please be cheeky...! I need these helpful steers! Yes, the internet is friend and a frightner! I was told about the need to have the urgent Colonoscopy just yesterday and have been is a bit of shock.. I am reading mainly from this site atm. It's a bloody wonderful resource. Full of wonderful people as well. With kindest from Kim :x:

Kim Dazed but Plucky
Quote from @Lirio345:
Good morning @Kim Dazed but Plucky (from another Kim!), a very warm welcome to the forum although I am sorry to hear about your health concerns.

I wanted to point out first of all that having several symptoms of BC does not mean that you have the disease, nor that it is advanced or late stage. You may understandably be leaping ahead here.

However if you are diagnosed with BC you will need to weigh up the pros and cons and you will receive different responses to your question from folk on here according to experience. I continue to have very good NHS treatment and would not personally cash in my pension unless I really really had to. In fact if I wasn’t satisfied with the treatment I was receiving, I would ask for a second opinion at another NHS Hospital - maybe a centre of cancer specialism.

My advice would be to stick with the NHS and only consider changing if you are not happy, however it is very much a personal decision. Please stay in touch though and let us know what you decide. Take very good care, Kim

Hi ....KIM ...!! Sorry I missed that my lovely.

Kim too. :x::x:

Alister

i think all that needs to be said has already been said but because it is so important I will repeat advise already given - google is NOT your friend.
(T2N1M0 2018 treatment complete 2019 )

Kim Dazed but Plucky

Yes, Alister, I have had really good advice! And I will need it..not been on Google all day...,! Must resist!! Thank you. Kim :x:

Poppies
Quote from @Kim Dazed but Plucky:
Yes, Poppies the not knowing is an agony. I also feel so stupid not to have pressed to have a colonoscopy in Nov 2020 when the blood was first found. But with lockdown I held off. So foolish.
Having thought more on it the NHS looks the best path. It's encouraging having you all endorse its value. Just great in fact. Thanks to you for your kind support. Kim

I think many of us would say we waited, I know I did, but often it is a slow developing cancer and I had probably had it for a very long time, so please don't feel stupid.
I am glad you have stopped googling. I tried to stay in the present and just focus on what I knew, rather than what I kept thinking. I made a decision, not to let tomorrow spoil today.
Take care, keep chatting :) Px

Kim Dazed but Plucky

Yes, you have it do right P, keep in your moment. I have been out walking more today and enjoyed. Though my dog is a bit knackered!
I will fully adopt your Motto, not letting tomorrow spoil today. Thanks ever so much Poppies. Kx

Baxter2

Good evening @Kim Dazed but Plucky and another warm welcome to the forum! (Love your forum name by the way!😂) I'm sure you'll find this a friendly and supportive community.

I'd just reiterate what the others have already said but I have to confess that in the early days, I was an obsessed Googler......especially during the sleepless nights! No doubt, I made my insomnia worse because of it too! At present, the only facts are that you have signs of a possible Bowel cancer and a colonoscopy appointment booked. Nothing else is fact so hard as it is, try to stick to the known facts and accept that you can do nothing to change or influence things as they stand. When is your colonoscopy appointment? It is certainly good advice to take along another trusted pair of ears to these appointments as often it's very difficult to properly 'hear' exactly what's being said. Please keep us posted if you can?

Sending loads of love and very best wishes to you!

Karen 💚💛💜❤️💙

Kim Dazed but Plucky

Hi Karen, who needs sleep right! 😬. But I am resisting the Google Frightner Web! Though you are so right, I do have to do us on where things are - not on my fears of where they might be. Thank for your kind advice Karen. Its just great that people in here get it. I guess it's shared life challenge as they say?
Sending you my thanks. Kim :x:

Baxter2

Hi @Kim Dazed but Plucky,

I've just had to edit my comment above which was riddled with mistakes! I'm blaming the atropine injection I get before one of my chemo drugs this afternoon! It makes your eyes go a bit iffy and blurry.........either that or full on chemo brain! 😂😂. Yes, you've got it though, you're in very good company here.......we do all absolutely 'get it'!

Just a wee hint, if you put @ in front of a persons forum name without leaving a space, they'll be notified you've left a reply for them as I've done with your name above. 😉. Hope you have a more restful night tonight.

Lots of love,

Karen 💛💜💙❤️💚

Kim Dazed but Plucky

Oh Karen, @Baxter2, you are in a cycle, poor you, I hope it's not too debilitating. ❤️.
Mind you, I make tons of spelling mistakes without the powerful drugs, so you do ever so well considering ! 😁. Thanks for the tip with the @ 😃👍
I hope we both get some good sleep!
Kim :x: 🥰❤️

Kim Dazed but Plucky

I meant to add that I am going to Derriford for my colonoscopy, and whatever treatment is needed. I hope to get the high level of care you guys seem to have had. Derriford has been very good in the time I was there with a friend who had acute pancreatitis.