Just diagnosed

If you've recently been diagnosed with bowel cancer, our 'Your Pathway' booklet is a great resource packed full of information about treatments, surgery options and patient stories

scottreacts

Phone call with histology result

Went for colonoscopy just over 2 weeks ago. Nurse phoned to tell me they found abnormal cells under the microscope as the consultant who did colonoscopy noticed abnormalities in the area and didnt remove that polyp like the other one. They can't tell what type of known cancer or if pre cancerous cells. They won't be able to tell until they remove it and part of the bowel and also see if spread on the lining or in tissue.
I have appointment next Monday with surgery consultant to discuss further and will have a CT scan booked in for probably in a couple of weeks or less.
They said it would be major surgery and I'm a bit confused as it may be cancer but may be precancerous. CT scan they said to check if spread.
Perhaps they want to tell me more in person rather than over the phone. This is quite difficult as I'm on my own and have no family.
Hopefully it's been found early, I'm in no pain.

Cheers scott

Lucy118

@scottreacts, so sorry you have all this worry. It does get easier once you know the plan. Sending big hugs and lots of love :x::x::x:

Ali

@scottreacts sorry to hear that but as Lucy says it does get easier when you have a plan. I too am on my own but I do have family though not nearby. It is difficult that they cannot tell you what type of cancer it is but in my case I was told I had a cancerous tumour but not told what stage until after it was removed and sent to histology. I am stage 2 but T4 as the tumour had pierced the Bowel wall. I ended up having an emergency operation but no stoma. I am currently having chemo to ‘mop up’ any cancerous cells that may or may not be around.
For you I would say wait and see what they say and use this forum as I have found it really useful. Happy to chat any time as I know what it’s like being on your own.

Ali :x::x:

Ali

@scottreacts and also the MacMillan nurses are lovely if you give them a call, even if it’s just for a chat.

Lirio345

Good morning @scottreacts, I am sorry that things are still up in the air for you but it sounds to me as if they are treating the second, still present polyp as cancer. This means belt and braces surgery to remove it and a section of the Bowel either side to minimise risk of leaving any pre/cancerous cells in place. They will also remove lymph nodes close to this section of the Bowel to check for abnormal cells. I understand that this is really worrying but they are being thorough.

There are some good publications produced by the Charity which will explain more, - two links below may be particularly helpful. If you are unable to take anyone with you on Monday it might be an idea to ask if you can record the appointment. Then you can take your time going back through everything. You should also be given the name of a specialist nurse who will be there to help you navigate everything. Take very good care, Kim :x::x:

bowelcancerorguk.s3.amazonaws.com/...ons/YourPathway_BowelCancerUK.pdf

bowelcancerorguk.s3.amazonaws.com/...kAfterDiagnosis_BowelCancerUK.pdf

stevejl

Hi @scottreacts sorry that you have found yourself on here.
You have already received excellent advice.
I went through exactly what you are going through now back in July this year as had 5 polyps removed at colonoscopy & am now 10 weeks post op from the removal of the cancerous one & on a similar path to recovery as @Ali & had the same excellent support & advice from this forum,
Remember you are not on your own you are now amongst a huge circle pf people from all over the UK who understand & get what you are going through & are here to support you through your journey as they have supported me through mine so far.
After my op my surgeon advised me I was cancer free just need mop up chemo which is fairly standard for colon cancer for a lot of people.
Take care
Sending love &hugs
:x::x::x::x:

scottreacts
Quote from @Lucy118:
@scottreacts, so sorry you have all this worry. It does get easier once you know the plan. Sending big hugs and lots of love

@Lucy118 Thank you, yes the plan will give me a route to good health. I'm feeling good this morning and positive. :x::x::x:

scottreacts
Quote from @Ali:
@scottreacts sorry to hear that but as Lucy says it does get easier when you have a plan. I too am on my own but I do have family though not nearby. It is difficult that they cannot tell you what type of cancer it is but in my case I was told I had a cancerous tumour but not told what stage until after it was removed and sent to histology. I am stage 2 but T4 as the tumour had pierced the Bowel wall. I ended up having an emergency operation but no stoma. I am currently having chemo to ‘mop up’ any cancerous cells that may or may not be around.
For you I would say wait and see what they say and use this forum as I have found it really useful. Happy to chat any time as I know what it’s like being on your own.

Ali

@Ali thank you for advice. Plan will give me a focus. I hope all goes well with your chemo and on road to recovery.

scottreacts
Quote from @Lirio345:
Good morning @scottreacts, I am sorry that things are still up in the air for you but it sounds to me as if they are treating the second, still present polyp as cancer. This means belt and braces surgery to remove it and a section of the Bowel either side to minimise risk of leaving any pre/cancerous cells in place. They will also remove lymph nodes close to this section of the Bowel to check for abnormal cells. I understand that this is really worrying but they are being thorough.

There are some good publications produced by the Charity which will explain more, - two links below may be particularly helpful. If you are unable to take anyone with you on Monday it might be an idea to ask if you can record the appointment. Then you can take your time going back through everything. You should also be given the name of a specialist nurse who will be there to help you navigate everything. Take very good care, Kim :x::x:

bowelcancerorguk.s3.amazonaws.com/...ons/YourPathway_BowelCancerUK.pdf

bowelcancerorguk.s3.amazonaws.com/...kAfterDiagnosis_BowelCancerUK.pdf

@Lirio345 hi. Yes I agree it seems they are treating it that way. Better to be safe.
Many thanks for the links you have provided and I will take a look as I like to know the details. Take care scott :x::x:

scottreacts
Quote from @stevejl:
Hi @scottreacts sorry that you have found yourself on here.
You have already received excellent advice.
I went through exactly what you are going through now back in July this year as had 5 polyps removed at colonoscopy & am now 10 weeks post op from the removal of the cancerous one & on a similar path to recovery as @Ali & had the same excellent support & advice from this forum,
Remember you are not on your own you are now amongst a huge circle pf people from all over the UK who understand & get what you are going through & are here to support you through your journey as they have supported me through mine so far.
After my op my surgeon advised me I was cancer free just need mop up chemo which is fairly standard for colon cancer for a lot of people.
Take care
Sending love &hugs

@stevejl Thanks for the reply and the information you have provided. I'm glad that you are cancer free and hope the mop up chemo is going well.
I am grateful of the advice and agree the help and support from this forum is excellent and empathetic.
Take care

Baxter2

Hello @scottreacts,

I'm so sorry you have this worry and have to wait a little longer for more information. It's never an easy position to be in is it? Somehow once you know all the facts and more importantly, what can be done to treat the problem, it feels a little more manageable. Not having family to talk things through with much make it an additional challenge I'm sure. I'd urge you to consider reaching g out to charities such as Macmillan, Maggies and Penny Brohn who can all offer 1:1 support and counselling of needed either on phone or via video call I think? You of course have all of us lot on here too! Always here for you and one another!

Lots of love,

Karen 💙❤️💚💜💛

scottreacts
Quote from @Baxter2:
Hello @scottreacts,

I'm so sorry you have this worry and have to wait a little longer for more information. It's never an easy position to be in is it? Somehow once you know all the facts and more importantly, what can be done to treat the problem, it feels a little more manageable. Not having family to talk things through with much make it an additional challenge I'm sure. I'd urge you to consider reaching g out to charities such as Macmillan, Maggies and Penny Brohn who can all offer 1:1 support and counselling of needed either on phone or via video call I think? You of course have all of us lot on here too! Always here for you and one another!

Lots of love,

Karen 💙❤️💚💜💛

@Baxter2 Hi Karen thanks for the reply.
Yes it is a little surreal. However I feel good today and positive.
It will be good to see the consultant on Monday and then I will be more aware of the plan ahead and take it from there.
Yes it's something to consider for some support. Hope you are keeping well.
Many Thanks

Scott