Lack of Information
After feeling ill for nearly nine months with vomiting, diarrhoea, lack of appetite and some foods tasting awful, along with major weight loss and hair loss, I eventually went down the private healthcare route to try to get a diagnosis and within a few weeks, had a CT scan which located a lump in my bowel and a following colonoscopy confirmed the lump where biopsies were taken.
Yesterday I met with a colorectal surgeon who confirmed I have cancer but he would not be able to operate as I needed to lose some weight. This will happen next year (no date or timescales clarified) once the surgeon has discussed my case with his anaesthetist team. I wasn't weighed at any time and I assume this decision was based on a visual rather than medical assessment. The tumour hasn't metastasised as far as he is aware which is great news but I was concerned about what could happen in the intervening time period it will take me to lose enough weight to have surgery (the amount of weight loss wasn't specified).
I left the consultation in shock, confused and bewildered, not knowing the type of cancer, what stage its at, what type surgery will take place and when, and whether I will receive any pretreatments to shrink or stabilise the tumour during this weight loss period.
Has anyone else experienced this lack of information? I feel to be prepared to fight this cancer, I need to have this information and a plan of action to get me through this.