Hello, a quick update from me. I got my latest CT scan and it's all clear. I go to annual scans now.
This after being told in summer 2020 that I had 9-12 months due to a BRAFV600E mutation and widespread nodal metastasis.
Pretty incredible to be writing this two years later.
What is more: apart from surgery in summer 2021, I've had no orthodox treatment since November 2020 when my last chemo cycle ended. I'm working full time and despite intermittent pain from surgery and peripheral neuropathy, things are good.
Which is not to say I'm cured. I fully recognise things can turn on a sixpence and I'll be up shit creek again. But, that said, I would have bitten the hand off anyone offering me two years at the time of my diagnosis. I'm grateful to be here and to have had this extra time with my family. I hope this offers someone out there hope.
Finally, I've continued with an intensive integrative regimen, and I'm pretty sure (along with the earlier NHS treatments) it is what has extended my life.
Happy to share it with anyone if you message me in private - these things can too easily be misconstrued as 'advice' or 'alternative' treatments on public message boards, and I'd rather avoid the confusion and risk of causing upset.
Warmest wishes to everyone.